A Family of Big Hearts – Part II
Read the second part of our “A Family of Big Hearts,” featuring Lindsey.
A Family of Big Hearts – Part II Read More »
A Family of Big Hearts – Part I
Read the first of our three-part series, “A Family of Big Hearts,” featuring Sierra.
A Family of Big Hearts – Part I Read More »
The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative
THE ACTION QUALITY IMPROVEMENT COLLABORATIVE How has collaboration improved outcomes for children with congenital heart disease (CHD) and heart failure? What current gaps exist in care and methodology? Co-Founder and Co-Director of ACTION, Angela Lorts, published “The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative” in the American Society for
Early experience with the HeartMate 3 continuous-flow ventricular assist device in pediatric patients and patients with congenital heart disease
A MULTICENTER REGISTRY ANALYSIS The HeartMate 3™ LVAD was originally designed for use in adults with heart failure. This study, published in the Journal of Heart and Lung Transplantation on February, 13th 2020, sought to assess the use of the HeartMate 3 VAD in children and adults with congenital heart disease (CHD): “Early experience with
Dylan’s Heart Transplant Journey
Read about Dylan’s journey and his heart transplant success.
Dylan’s Heart Transplant Journey Read More »
It’s Really Just the Beginning
Read about Hana’s heart journey.
It’s Really Just the Beginning Read More »
Collaboration and New Data in ACTION: A Learning Health Care System to Improve Pediatric Heart Failure and Ventricular Assist Device Outcomes
A LEARNING HEALTH CARE SYSTEM TO IMPROVE PEDIATRIC HEART FAILURE AND VENTRICULAR ASSIST DEVICE OUTCOMES ACTION was developed to address issues of limited data and suboptimal outcomes in pediatric heart failure and VAD care. Recognizing that multi-institutional collaboration among pediatric heart failure centers would allow the community to acquire mastery and generalizable knowledge in this
VADs Used as a Bridge to Transplant Can Lessen the Severity of Illness in Children
An important study published in The Journal of Heart and Lung Transplantation in 2018 found that ventricular assist devices (VADs), when used as a bridge to transplant, lessen the severity of illness in children. The publication, “Post-transplant outcomes in pediatric ventricular assist device patients: A PediMACS-Pediatric Heart Transplant Study linkage analysis,” is a linkage analysis
VADs Used as a Bridge to Transplant Can Lessen the Severity of Illness in Children Read More »
Inspiring ACTION
After a heartbreaking experience, Liam and his family inspired providers across the country to rethink how they communicate and learn from one another. Now, with the ACTION collaborative, every patient has access to a healthcare community working together to provide the best care throughout their heart health journey.
