Cardiac Rehabilitation with the MedBIKE™

Researchers assessed the safety and practicality of high-intensity interval training with a novel MedBIKE™ in children with Fontan physiology. The MedBIKE™ is a custom telemedicine ergometer that includes a video game platform and live feed of patient video/audio, electrocardiography, pulse oximetry, and power output for remote medical supervision and modulation of work. “Cardiac rehabilitation in […]

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Changes in Renal Function After LVAD Placement in Pediatric Patients

We know children with advanced heart failure often experience renal dysfunction (RD). This analysis expanded clinical knowledge on changes in renal function after left ventricular assist device (LVAD) placement in this population: “Changes in renal function after left ventricular assist device placement in pediatric patients: A Pedimacs analysis.” This important data analysis was published in

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ISHLT Consensus Document for MCS Infection Prevention and Management

“An ISHLT consensus document for prevention and management strategies for mechanical circulatory support infection” was published in The Journal of Heart and Lung Transplantation in June of 2017. This important document sought to reduce practice variation regarding patient selection for durable mechanical circulatory support (MCS), implant technique, infection prevention strategies anti-microbial prophylaxis, drive-line care and

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FDA Expands Labeling of Abbott’s HeartMate 3™ LVAD for Pediatric Use with Collaboration from ACTION

ACTION centers collaborate with Abbott to update FDA labeling of the HeartMate 3™ LVAD for use in pediatrics CINCINNATI — The FDA has updated Abbott’s HeartMate 3™ LVAD labeling to treat children with heart failure. Collaborating with Abbott, ACTION’s clinicians, researchers, parents and patients from over 50 medical institutions provided high-quality, real-world retrospective data to accelerate the

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Discharge and Readmissions After Ventricular Assist Device Placement in the US Pediatric Hospitals

ACTION is working to decrease the amount of time pediatric VAD patients spend in the hospital to get kids home and to stay at home! This descriptive study, published in ASAIO Journal, reveals that only half of 298 children with VAD implants were discharged from the hospital and 2/3 needed to be readmitted. We can

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Heart failure in children: Priorities and approach of the ACTION collaborative

This article summarizing ACTION’s heart failure initiatives was published in Progress in Pediatric Cardiology’s “Highlights of the 23rd Annual Update on Pediatric and Congenital Cardiovascular Disease: Vision 2020.” The article explains the benefits of a learning network approach in the field of pediatric heart failure and VAD care. It describes ACTION’s quality improvement projects, including

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A Coordinated Approach to Improving Pediatric Heart Transplant Waitlist Outcomes: A Summary of the ACTION November 2019 Waitlist Outcomes Committee Meeting

This ACTION article, published in Pediatric Transplantation, describes the results of ACTION’s November 2019 Waitlist Outcomes Committee (WOC) meeting. The WOC committee used improvement science methodology to develop a six-step heart failure-transplant trajectory that discusses failure and opportunities for improvement at each step. As a result, WOC initiated four projects intended to reduce waitlist mortality. 

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