Our novel projects and initiatives are driving change for pediatric and adult congenital heart disease patients whom are at risk of heart dysfunction or heart failure. Read more below about our focus areas and individual projects.
Our Initiatives in ACTION
Improving Treatment Options and Outcomes for Children with Heart Failure
Focused on improving the care of patients with heart dysfunction or heart failure. Using both quality improvement and research methodology we are focused on improving care team communication, goal directed medical therapy (GDMT), quality of life and myocardial recovery.
Decreasing Complications After Ventricular Assist Device (VAD) Implant
Some heart failure patients may need a VAD to pump their blood. These devices can be associated with adverse events such as strokes, bleeding, or infection. Using quality improvement and research methodology we've decreased stroke rates by 50% and continue to focus on decreasing all VAD therapy complications.
Preparing Patients for Transplant & Maximizing Donor Acceptance
Transplant outcomes are improved if patients are strong going into the surgery. We have many projects focused on the right time for transplantation. Donor availability is an ACTION priority and can be improved by sharing experiences on donor acceptance and perfecting best donor recipient size match.
Education for Patients, Families, and Providers
We continually work to improve and develop educational resources on heart failure and advanced therapies, such as VADs. Our materials, both written and electronic, are designed for a wide variety of user groups including patients, caregivers, and clinical providers.
Improving Treatment & Outcomes for Children with Muscular Dystrophy
Patients with Muscular Dystrophy may develop cardiac dysfunction and may need advanced cardiac therapies. These therapies may include medications, ventricular assist devices or new technology for monitoring. Quality improvement and research methodologies are being used to improve the cardiac outcomes of this patient group.