IMPACT
Our Data
Almost every pediatric hospital in the United States and Canada serving patients with advanced heart failure is a member of ACTION and contributes data collection for continuous learning and development. Together, we comprise the largest nationwide effort to improve outcomes for pediatric patients with heart failure and VADs.
— Heart Failure —
Ventricular Assist Devices
The data below was taken from our interactive Power BI report, which represents real time data collection and not finalized cases. After sites finalize data entry and adjudication has been performed, a final version of the data will be recorded in the ACTION registry and can be requested from the ACTION DCC. For this reason the data below should not be used in publications, but is suitable for presentations and internal use.
Patients Enrolled
in VAD Registry as of 1/17/24
46
Sites Reporting Data
Only ACTION members with provisioned Power BI access can view the full live report. For access, contact the ACTION DCC. To access your site specific report, click this link. The site specific report will show up on the “Apps” section on “Power BI Service.”
For more information on project specific data, visit Our Projects.
April 2018 – December 2022
KEY FINDINGS
- Over 1,000 devices with over 200,000 device days in the database
- Continued shift of patient diagnosis with now 37% of patients with congenital heart disease
- Stroke incidence of 12% shows sustained improvement compared to historical reports
CITATION
ACTION Data Coordinating Center. “2022 Annual ACT-VAD Report.” Report date July 1, 2023.
https://www.actionlearningnetwork.org/our-data/
ACTION VAD Mortality Calculator for Clinicians
This tool is used by clinicians in ACTION for the purpose of quality improvement. It should only be used to manage expectations and plan for potential complications that may occur. Knowing that a patient is at high risk should heighten awareness and improve outcomes of these critically ill children.
Need to Submit a Proposal?
Do you have an idea or proposal for ACTION? Use the online submission form for quality improvement projects, education materials, research proposals, and data requests.
