Heart of ACTION

Practice Variation in Thromboprophylaxis Management of Outpatient Pediatric Cardiomyopathy Patients: Survey of ACTION Providers

This study surveyed pediatric heart failure practitioners across ACTION centers to understand thromboprophylaxis practices in children with cardiomyopathy. The survey explored decision-making factors and medication choices using three clinical vignettes: dilated cardiomyopathy (DCM), left ventricular non-compaction (LVNC), and restrictive cardiomyopathy (RCM).

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ACTION PublicationPublications

Initial Multicenter Experience with Ventricular Assist Devices in Children and Young Adults with Muscular Dystrophy: An ACTION Registry Analysis

The Pulse - October 2022
NewsThe Pulse

The Pulse — October 2022

Member of the MonthStories

Melissa McQueen

ACTION PublicationPublications

Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION

NewsUpdates

Ideas to Improve Bivalrudin Monitoring OPS

The Pulse July 2022
NewsThe Pulse

The Pulse — July 2022

NewsPress Release

Parent Project Muscular Dystrophy (PPMD) funds ACTION to expand Muscular Dystrophy collaboration efforts

Jennie McAllister, MS, CPNP, DNP
Member of the MonthStories

Jennie McAllister

Rob Hyslop
Member of the MonthStories

Rob Hyslop

Publications

Systemic ventricular assist device support of the Fontan circulation yields promising outcomes: An analysis of The Society of Thoracic Surgeons Pedimacs and Intermacs Databases

Patient and Device Selection in Pediatric MCS: A Review of Current Consensus and Unsettled Questions
ACTION PublicationPublications

Patient and Device Selection in Pediatric MCS: A Review of Current Consensus and Unsettled Questions

ACTION PublicationPublications

Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION

Raylan
Patient StoriesStories

A New Heart, A New Community: Raylan’s Story

Other PublicationsPublications

Ventricular assist devices in pediatric cardiomyopathy and congenital heart disease: An analysis of the German National Register for Congenital Heart Defects

Other PublicationsPublications

Neurosurgical intervention in children with ventricular assist devices: A single-center case series review

Rachel White
Member of the MonthStories

Rachel White

Deip Nandi
Member of the MonthStories

Deip Nandi

Nancy Jaworski, APRN, DNP, PCNS-BC
Member of the MonthStories

Nancy Jaworski

NewsUpdates

ACTION’s strategy for 2022 and beyond…

Mar 2022 The Pulse
NewsThe Pulse

The Pulse — March 2022

Nora Hammond, MSN, APRN, CPNP-AC
Member of the MonthStories

Nora Hammond

Svetlana Shugh
Member of the MonthStories

Svetlana Shugh

Farhan Zafar, MD
Member of the MonthStories

Farhan Zafar

Feb2022 The Pulse
NewsThe Pulse

The Pulse — February 2022

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