|
Happy Fall to All! We had a successful meeting in St. Louis during the International HF/VAD Summit, and it was great to see so many of you in person! We brainstormed new ideas for QI/Research projects, clinical trials, education projects, advocacy efforts, and ways to improve data collection and project participation. We also played ACTION Trivia — did you know ACTION now has 66 sites in North America and has 27 manuscripts published since 2019? We are starting to plan for our next in-person meeting, which will be at CHOP in February 2024. Details to follow soon. We are working through the many great ideas produced from the meeting, and we will be in touch
with committees and leaders soon to get several of these new projects off the ground. Thank you for your continued efforts! Regards,
SAVE THE DATE
for upcoming ACTION MEETINGS at:CHOP - February 2024
27th Annual Update on Pediatric and Congenital Cardiovascular Disease Conference
Scottsdale, AZ
More to follow | Conference Info
ISHLT - April 2024
44th Annual Meeting & Scientific Sessions of the ISHLT
Prague, Czech Republic
More to follow | Conference Info
ASAIO - May 2024
American Society for Artificial Internal Organs – 69th Annual Conference
Baltimore, MD
More to follow | Conference Info
First Pediatric Cardiac Device IDE Trial (Berlin Heart EXCOR® Active Driver) has Completed Enrollment Using the ACTION Registry
Check out the recording from our August 3rd book club with Emma Rothman, author of Things My Therapist Doesn’t Want Me to Say: Ten Years Post Heart Transplant!
Buy the book
Check out these valuable tools and resources, designed to empower and inform those navigating the challenges of Muscular Dystrophy. Stay tuned to see how ACTION is
working to educate and improve outcomes for our patients with Muscular Dystrophy.
OPS, Handbooks, & Data Reports
Quality Improvement Updates
Data as of October 11, 2023
132 HeartMate 3TM and Berlin Heart patients have been entered in the De-Escalation Project. 83 of the 132 patients achieved de-escalation before either 1. activation for transplant, 2. completing hospital course to discharge, or 3. receiving their transplant. Achieving de-escalation means the patient was extubated, off inotropes, ambulating or age equivalent, and stated feeds. This project is designed to encourage patient stability prior to transplant. It is also an effort to encourage discharge of patients on HeartMate 3TM.
The discharge rate for HeartMate3TM patients is improving, especially in our quality improvement cohort. We are working on a new Discharge Bundle for HeartMate 3TM patients that will be rolling out soon – stay tuned!
Patients and parents told us how they’re feeling post-VAD implant.
289 surveys were completed from 6/8/21 through 10/17/23.
See the Visual Analog Scale results below.
Registry Database Updates
Simplified Clinical data as of October 17, 2023
Total # Patients Enrolled 1,411
Total # Patients Enrolled 446
Total # Patients Enrolled 88
Total # Patients Enrolled 365 Meds Titration: 18
CardioMEMS: 24
Apple Watch: 11
If you need access to enter data, or have any questions please email us.
by Adam M. Grant 2013 – 320 pgs – Good Reads: 4.07 A groundbreaking look at why our interactions with others hold the key to success. For generations, we have focused on the individual drivers of success: Passion, hard work, talent, and luck. But in today’s dramatically reconfigured world, success is increasingly
dependent on how we interact with others. In Give and Take, Adam Grant, an award-winning researcher and Wharton’s highest-rated professor, examines the surprising forces that shape why some people rise to the top of the success ladder while others sink to the bottom. Praised by social scientists, business theorists, and corporate leaders, Give and Take opens up an approach to work, interactions, and productivity that is nothing short of revolutionary.
|
