Heart of ACTION

Owen’s Story: A Journey of Resilience and Hope

Born with a complex congenital heart defect, Owen has faced more medical challenges in his 20 years than most do in a lifetime, however his resilience and optimism have carried him through. Today, he’s thriving as a college student with dreams of becoming a physician’s assistant and raising awareness about organ donation. His journey—from patient to future healthcare provider—is a testament to the power of perseverance, community support, and lifesaving health care.

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NewsPress Release

ACTION Launches Innovative Children’s Heart Healthy Video Series with Rising Star Julian Lerner

Member of the MonthStories

Aamir Jeewa

Introduction to Myocarditis
NewsUpdates

An Introduction to Myocarditis

ACTION PublicationPublications

Multicenter outcomes for ventricular assist device support for failed stage II palliation

ACTION PublicationPublications

Impact of HeartWare VAD discontinuation on the pediatric population: An ACTION registry analysis

NewsUpdates

Fontan Surveillance Resource Tool

NewsPress Release

February’s National Heart Health Month: 66 Hospitals Unite Nationwide under ACTION to Bridge Gaps in Pediatric Cardiac Care

The Pulse - January 2024
NewsThe Pulse

The Pulse — January 2024

ACTION PublicationPublications

Outcomes after initial heart failure consultation in Fontan patients

NewsUpdates

Heart Healthy Video Series

Patient StoriesStories

Defying the Odds: Riley’s Life with Duchenne

Patient StoriesStories

Care Across State Lines: Ricky’s Journey to Life-Saving Surgery

ACTION PublicationPublications

Reducing donor acceptance practice variation – Learnings from a discussion forum

ACTION PublicationPublications

Clinical Outcomes of SARS-CoV-2 Infection in Pediatric Patients on Ventricular Assist Device Support: An Action Registry Analysis

NewsThe Pulse

The Pulse — October 2023

NewsUpdates

Muscular Dystrophy Resource Tools

NewsUpdates

PediMag™ & CentriMag™ OPS

NewsPress Release

First Pediatric Cardiac Device IDE Trial (Berlin Heart EXCOR® Active Driver) has Completed Enrollment Using the ACTION Registry

Telehealth
ACTION PublicationPublications

Successful Implementation of Telehealth Visits in the Paediatric Heart Failure and Heart Transplant Population

NewsThe Pulse

The Pulse — July 2023

ACTION PublicationPublications

Taking ACTION: A Prognostic Tool for Pediatric Ventricular Assist Device Mortality

Patient StoriesStories

From ACTION Patient to Summer Intern: Sam’s Story

ACTION PublicationPublications

Expanding Use of the HeartMate 3 VAD in Pediatric and Adult Patients within ACTION

NewsUpdates

2022 ACT-VAD Registry Data Report

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