Heart of ACTION

The ACTION VAD registry: A collective five-year experience

A report describing patient and device characteristics, and outcomes through 1-year post-VAD implant. The 5-year ACTION VAD experience highlights the growing collaboration in the pediatric VAD community and changes in clinical practice. More work is needed to improve survival and limit adverse outcomes, especially in younger patients.

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ACTION PublicationPublications

Capturing Physiologic Data in Children with Heart Failure Using Wearable Digital Technology: Lessons From Pilot Project

April 4, 2025
ACTION PublicationPublications

The ACTION VAD registry: A collective five-year experience

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ACTION PublicationPublications

Bridging gaps in pediatric device development: The power of ACTION – a collaborative learning network

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ACTION PublicationPublications

Cardiac treatment for Duchenne muscular dystrophy: consensus recommendations from the ACTION muscular dystrophy committee

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Patient StoriesStories

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The Pulse eNewsletter - February 2025
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The Pulse — February 2024

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Understanding Genetics

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ACTION PublicationPublications

Outcomes for Children With Congenital Heart Disease Undergoing Ventricular Assist Device Implantation: An ACTION Registry Analysis

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ACTION PublicationPublications

Taking ACTION to detect myocarditis related to recombinant gene transfer therapy for Duchenne Muscular Dystrophy; Consensus recommendations for cardiac surveillance

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ACTION PublicationPublications

Over 100 Fontan Patients on Systemic Ventricular Assist Device Support: An ACTION Update

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ACTION PublicationPublications

Ventricular assist device implantation in children with a mechanical valve: An ACTION registry analysis

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ACTION and Johnson & Johnson Med Tech Press Release
NewsPress Release

ACTION Centers Collaborate with Johnson & Johnson MedTech to Secure FDA Labeling for Impella Support System in Pediatric Patients

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ACTION PublicationPublications

Current state of neurodevelopmental and psychosocial care practices for paediatric patients with ventricular assist devices: an Advanced Cardiac Therapies Improving Outcomes Network and Cardiac Neurodevelopmental Outcome Collaborative collaborative survey

December 11, 2024
Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience
ACTION PublicationPublications

Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience

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ACTION PublicationPublications

Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from ACTION

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VADs Device Score
ACTION PublicationPublications

Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Ventricular Assist Device Score

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HeartMate 3™ LVAD Patient Education Handbook – UPDATED!

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NewsThe Pulse

The Pulse — November 2024

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ACTION PublicationPublications

Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation

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ACTION PublicationPublications

ACTION-ARC Pediatric and Adult Congenital Heart Disease Ventricular Assist Device Adverse Event Definitions-2023

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Heart Failure Patient and Family Education Handbook
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NEW! Heart Failure Success Patient & Family Education Handbook

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The Pulse eNewsletter July 2024
NewsThe Pulse

The Pulse — July 2024

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A new HeartMate 3™ LVAD Patient Education Handbook for ADULTS is Now Available!

July 22, 2024
ACTION PublicationPublications

Mechanical Ventilation and Outcomes of Children Who Undergo Ventricular Assist Device Placement: 2014–2020 Linked Analysis From the Advanced Cardiac Therapies Improving Outcomes Network and Pediatric Cardiac Critical Care Consortium Registries

May 20, 2024
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