Heart of ACTION

Raylan

A New Heart, A New Community: Raylan’s Story

From the moment Raylan was born, he fought for his life. Born with cardiomyopathy, Raylan was placed on the transplant list at seven weeks old. His parents, Bonnie and Craig, could only sit and wait for answers about their baby. After agonizing challenges, numerous roadblocks, and more than a few long nights, Bonnie and Craig brought their baby home and found a new community along the way.

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ACTION PublicationPublications

Initial multicenter experience with ventricular assist devices in children and young adults with muscular dystrophy: An ACTION registry analysis

The Pulse - October 2022
NewsThe Pulse

The Pulse — October 2022

Member of the MonthStories

Melissa McQueen

ACTION PublicationPublications

Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION

News

Ideas to Improve Bivalrudin Monitoring OPS

The Pulse July 2022
NewsThe Pulse

The Pulse — July 2022

NewsPress Release

Parent Project Muscular Dystrophy (PPMD) funds ACTION to expand Muscular Dystrophy collaboration efforts

Jennie McAllister, MS, CPNP, DNP
Member of the MonthStories

Jennie McAllister

Rob Hyslop
Member of the MonthStories

Rob Hyslop

Publications

Systemic ventricular assist device support of the Fontan circulation yields promising outcomes: An analysis of The Society of Thoracic Surgeons Pedimacs and Intermacs Databases

Patient and Device Selection in Pediatric MCS: A Review of Current Consensus and Unsettled Questions
ACTION PublicationPublications

Patient and Device Selection in Pediatric MCS: A Review of Current Consensus and Unsettled Questions

ACTION PublicationPublications

Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION

Raylan
Patient StoriesStories

A New Heart, A New Community: Raylan’s Story

Other PublicationsPublications

Ventricular assist devices in pediatric cardiomyopathy and congenital heart disease: An analysis of the German National Register for Congenital Heart Defects

Other PublicationsPublications

Neurosurgical intervention in children with ventricular assist devices: A single-center case series review

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