This article summarizing ACTION’s heart failure initiatives was published in Progress in Pediatric Cardiology’s “Highlights of the 23rd Annual Update on Pediatric and Congenital Cardiovascular Disease: Vision 2020.” The article explains the benefits of a learning network approach in the field of pediatric heart failure and VAD care. It describes ACTION’s quality improvement projects, including “a collaboration with the Pediatric Health Information System (PHIS) database, timely referral for heart failure management in Fontan patients, formation of a waitlist outcomes committee, and a heart failure management committee with numerous parent and provider education initiatives.”
Our key takeaway? This article demonstrates the power of multi-institutional collaboration between pediatric heart failure experts, patients, and caregivers to shake up the field of pediatric cardiology. The aforementioned quality improvement projects will help us garner real-world data that will inform change of practice and advance the field. The bottom line? None of this would be possible without listening to the voices of patients, their caregivers, and dedicated health professionals.
Speaking of the dedicated health professionals going above-and-beyond for our kids, ACTION leaders who authored this article include Neha Bansal of Children’s Hospital at Montefiore, Danielle Burstein of Children’s Hospital of Philadelphia, Angela Lorts of Cincinnati Children’s Hospital Medical Center, Lauren Smyth of Cincinnati Children’s Hospital Medical Center, David Rosenthal of Lucile Packard Children’s Hospital, and David Peng of C.S. Mott Children’s Hospital.
Neha Bansal, Danielle S. Burstein, Angela Lorts, Lauren Smyth, David N. Rosenthal, David M. Peng, Heart failure in children: Priorities and approach of the ACTION collaborative, Progress in Pediatric Cardiology, Volume 59, 2020, 101313, ISSN 1058-9813, https://doi.org/10.1016/j.ppedcard.2020.101313.