Purpose Cardiac disease results in significant morbidity and mortality in patients with muscular dystrophy (MD). Single centers have reported their ventricular assist device (VAD) experience in specific MDs and in …
ACTION receives $2 million grant from Parent Project Muscular Dystrophy (PPMD) to expand muscular dystrophy focused research and quality improvement initiatives
There is wide practice variation when deciding timing of ventricular assist device implantation for children with end-stage heart failure. The Model for End-stage Liver Disease score eXcluding INR (MELD-XI) is …
Significance of MELD-XI Score on Survival in Children Undergoing VAD Implantation Read More »
Routine physical activity has been increasingly regarded as important for youth with cardiomyopathies or congenital heart disease with heart failure, including Fontan circulatory failure. This ACTION publication shows results of …
“Learning networks in pediatric heart failure and transplantation” was published June 17, 2021 in Pediatric Transplantation. This ACTION publication defines “learning networks” and how they’re different from traditional clinical research …
Learning networks in pediatric heart failure and transplantation Read More »
COVID 19 infection in children causes a hyper-inflammatory syndrome referred to as multisystem inflammatory syndrome in children (MIS-C). This ACTION publication, published June 2, 2021 in Pediatric Cardiology, provides a …
MIS-C Associated with COVID-19 Anti-thrombosis Guideline of Care for Children Read More »
Cerebrovascular accidents (CVA) are a common problem in pediatric VAD support. This Pedimacs analysis investigates rates, risk factors, and outcomes of CVA in pediatric patients supported on VAD: “Stroke in …
Stroke in Pediatric VAD Patients: A Pediamacs Registry Analysis Read More »
ACTION defines and collects pediatric heart failure metrics to implement quality improvement initiatives. This study sought to describe medication use at the time of discharge for children admitted with acute …
Establishing Baseline Metrics of Heart Failure Medication Use in Children Read More »
Cerebrovascular accidents (CVA) are a common problem in pediatric VAD support. This Pedimacs analysis investigates rates, risk factors, and outcomes The field of pediatric mechanical circulatory support changed dramatically when …
Berlin Heart EXCOR and ACTION Post-Approval Surveillance Study Report Read More »
There is little standardization across pediatric heart failure centers when it comes to the use of exercise testing and cardiac rehabilitation (CR) after VAD placement. “Variation in Cardiac Rehabilitation for …
Variation in CR for Pediatric VAD Recipients Across North America Read More »
