Purpose Cardiac disease results in significant morbidity and mortality in patients with muscular dystrophy (MD). Single centers have reported their ventricular assist device (VAD) experience in specific MDs and in …
The results of an ACTION-wide survey of pediatric cardiology providers are detailed in the latest ACTION publication, Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): …
Though pediatric VAD use is increasing, data around outcomes related to patient treatment and device selection decisions is not yet robust enough to inform consistent practices among providers. The authors …
Published on March 5, 2022, Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION focused on characterizing strokes in children with ventricular assist devices. This review included …
Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION Read More »
Routine physical activity has been increasingly regarded as important for youth with cardiomyopathies or congenital heart disease with heart failure, including Fontan circulatory failure. This ACTION publication shows results of …
Despite the fact that VADs are now regarded as an important treatment option in pediatric heart failure, most hospitals perform less than 10 VAD surgeries in children a year. “ISHLT …
ISHLT Consensus Statement for the Selection and Management of Pediatric and CHD on VAD Read More »
“Learning networks in pediatric heart failure and transplantation” was published June 17, 2021 in Pediatric Transplantation. This ACTION publication defines “learning networks” and how they’re different from traditional clinical research …
Learning networks in pediatric heart failure and transplantation Read More »
COVID 19 infection in children causes a hyper-inflammatory syndrome referred to as multisystem inflammatory syndrome in children (MIS-C). This ACTION publication, published June 2, 2021 in Pediatric Cardiology, provides a …
MIS-C Associated with COVID-19 Anti-thrombosis Guideline of Care for Children Read More »
ACTION defines and collects pediatric heart failure metrics to implement quality improvement initiatives. This study sought to describe medication use at the time of discharge for children admitted with acute …
Establishing Baseline Metrics of Heart Failure Medication Use in Children Read More »
Right heart failure (RHF) after LVAD implantation can negatively impact a child’s transplant candidacy and survival. Successful LVAD outcomes require anticipation, prevention, early identification, and management of RHF, but there …
Right Heart Failure Considerations in Pediatric VADs Read More »
