ACTION is a multicenter learning health system spanning 52 sites and over 5,000 pediatric patients that combines standardized data collection, quality improvement, and research to drive measurable gains in outcomes for children with congenital heart disease-related heart failure.
This quarterly meeting is open to everyone — all active centers, patient & family members, and industry collaborators! Join us to hear from leadership about current projects, upcoming initiatives, and opportunities
ACTION 4 ALL – September 2025 Meeting Read More »
This quarterly meeting is open to everyone — all active centers, patient & family members, and industry collaborators! Join us to hear from leadership about current projects, upcoming initiatives, and opportunities
ACTION 4 ALL – June 2025 Meeting Read More »
This quarterly meeting is open to everyone — all active centers, patient & family members, and industry collaborators! Join us to hear from leadership about current projects, upcoming initiatives, and opportunities
ACTION 4 ALL – March 2025 Meeting Read More »
ACTION and the Academic Research Consortium (ARC) aimed to harmonize definitions of pediatric and CHD AEs for use in clinical trials, registries, and regulatory evaluation.
Though pediatric VAD use is increasing, data around outcomes related to patient treatment and device selection decisions is not yet robust enough to inform consistent practices among providers. The authors
“Learning networks in pediatric heart failure and transplantation” was published June 17, 2021 in Pediatric Transplantation. This ACTION publication defines “learning networks” and how they’re different from traditional clinical research
Learning networks in pediatric heart failure and transplantation Read More »
This article summarizing ACTION’s heart failure initiatives was published in Progress in Pediatric Cardiology’s “Highlights of the 23rd Annual Update on Pediatric and Congenital Cardiovascular Disease: Vision 2020.” The article
Heart failure in children: Priorities and approach of the ACTION collaborative Read More »
THE ACTION QUALITY IMPROVEMENT COLLABORATIVE How has collaboration improved outcomes for children with congenital heart disease (CHD) and heart failure? What current gaps exist in care and methodology? Co-Founder and
A LEARNING HEALTH CARE SYSTEM TO IMPROVE PEDIATRIC HEART FAILURE AND VENTRICULAR ASSIST DEVICE OUTCOMES ACTION was developed to address issues of limited data and suboptimal outcomes in pediatric heart
