Purpose Cardiac disease results in significant morbidity and mortality in patients with muscular dystrophy (MD). Single centers have reported their ventricular assist device (VAD) experience in specific MDs and in …
ACTION receives $2 million grant from Parent Project Muscular Dystrophy (PPMD) to expand muscular dystrophy focused research and quality improvement initiatives
There is wide practice variation when deciding timing of ventricular assist device implantation for children with end-stage heart failure. The Model for End-stage Liver Disease score eXcluding INR (MELD-XI) is …
Significance of MELD-XI Score on Survival in Children Undergoing VAD Implantation Read More »
Routine physical activity has been increasingly regarded as important for youth with cardiomyopathies or congenital heart disease with heart failure, including Fontan circulatory failure. This ACTION publication shows results of …
Despite the fact that VADs are now regarded as an important treatment option in pediatric heart failure, most hospitals perform less than 10 VAD surgeries in children a year. “ISHLT …
ISHLT Consensus Statement for the Selection and Management of Pediatric and CHD on VAD Read More »
It’s critical to optimize clinical outcomes of VAD support for shunted single ventricle patients. “Hemodynamic Response to Device Titration in the Shunted Single Ventricle Circulation: A Patient Cohort Modeling Study” …
Hemodynamic Response to Device Titration in the Shunted Single Ventricle Circulation Read More »
“Learning networks in pediatric heart failure and transplantation” was published June 17, 2021 in Pediatric Transplantation. This ACTION publication defines “learning networks” and how they’re different from traditional clinical research …
Learning networks in pediatric heart failure and transplantation Read More »
COVID 19 infection in children causes a hyper-inflammatory syndrome referred to as multisystem inflammatory syndrome in children (MIS-C). This ACTION publication, published June 2, 2021 in Pediatric Cardiology, provides a …
MIS-C Associated with COVID-19 Anti-thrombosis Guideline of Care for Children Read More »
Cerebrovascular accidents (CVA) are a common problem in pediatric VAD support. This Pedimacs analysis investigates rates, risk factors, and outcomes of CVA in pediatric patients supported on VAD: “Stroke in …
Stroke in Pediatric VAD Patients: A Pediamacs Registry Analysis Read More »
Did you know the second most common reason for refusal of donor hearts in pediatric heart transplantation is donor size mismatch? Donor-to-recipient size matching is almost exclusively weight-based, but there …
A Novel Method of Donor‒Recipient Size Matching in Pediatric Heart Transplantation Read More »
