Muscular Dystrophy Resource Tools
We’re excited to introduce these valuable tools and resources, designed to empower and inform those navigating the challenges of Muscular Dystrophy. Stay tuned to see how ACTION is working to …
heart failure
Hearts & Minds: Neurodevelopment in Pediatric Heart Failure and VAD Patients
Prompted by needs and interests of our Families in ACTION (FACT) Committee, ACTION recently joined forces with a fellow Cardiac Networks United organization, the Cardiac Neurodevelopmental Outcome Collaborative to: develop patient …
Hearts & Minds: Neurodevelopment in Pediatric Heart Failure and VAD Patients Read More »
Pediatric Heart Failure Toolkit
Check out ACTION’s Pediatric Heart Failure Toolkit. Download patient and care team friendly handouts below. Providers For more tools, including a Heart Failure Daily Communication Checklist and a Heart Failure Discharge Plan login …
The Pulse — October 2022
Happy Fall! We are looking forward to seeing you virtually during our Fall Meeting on Tuesday, November 8, from 1–5pm ET. Registration details are included below.
We have had a busy couple of months since our last newsletter in July, including the pilot launch of the Heart Failure registry, a successful Fontan Referral design meeting, and reaching over 1,000 patients entered into our VAD Registry. Join us for our Fall Meeting to see what’s coming for the rest of 2022!
How are we currently using ICDs and CRT in pediatric heart failure?
Join us for Heart Success Month — Week 3
Real World Evidence to Broaden Treatment Options for Children with Heart Failure
Using data collected by the providers we are able to evaluate safety of medicines and devices. This is a cost effective and efficient way to bring new therapies to the bedside.
Improving Treatment Options & Outcomes for Children with Heart Dysfunction
Focused on improving the care of patients with heart dysfunction or heart failure. Using both quality improvement and research methodology we are focused on improving care team communication, goal directed medical therapy (GDMT), quality of life and myocardial recovery.
