heart failure Archives - Advanced Cardiac Therapies Improving Outcomes Network

The Pulse — October 2022

Happy Fall! We are looking forward to seeing you virtually during our Fall Meeting on Tuesday, November 8, from 1–5pm ET. Registration details are included below.
We have had a busy couple of months since our last newsletter in July, including the pilot launch of the Heart Failure registry, a successful Fontan Referral design meeting, and reaching over 1,000 patients entered into our VAD Registry. Join us for our Fall Meeting to see what’s coming for the rest of 2022!

CardioMEMS in Pediatrics and Congenital Heart Disease

Join us for Heart Success Month — Week 4

How are we currently using ICDs and CRT in pediatric heart failure?

Join us for Heart Success Month — Week 3

Heart Failure Success Registry Re-Launch

Join us for Heart Success Month — Week 2

SGLT2 Use in Young Adults and Children—Where are we at?

Join us for Heart Success Month — Week 1

Real World Evidence to Broaden Treatment Options for Children with Heart Failure

ACTION Projects

Using data collected by the providers we are able to evaluate safety of medicines and devices. This is a cost effective and efficient way to bring new therapies to the bedside.

Improving Treatment Options and Outcomes for Children with Heart Failure

Improving Treatment Options & Outcomes for Children with Heart Dysfunction

ACTION Projects

Focused on improving the care of patients with heart dysfunction or heart failure. Using both quality improvement and research methodology we are focused on improving care team communication, goal directed medical therapy (GDMT), quality of life and myocardial recovery.

Cardiomyopathy

Patient Populations

Cardiomyopathy patients have heart muscle problems that affect the ability of the heart to fill with blood and/or eject blood to the body. In some cases, they may have signs and symptoms of heart failure—these patients will need routine monitoring and may need treatment such as cardiac medicines, mechanical devices, or transplantation.

Patient and Device Selection in Pediatric MCS: A Review of Current Consensus and Unsettled Questions

ACTION Publication, Publications

Though pediatric VAD use is increasing, data around outcomes related to patient treatment and device selection decisions is not yet robust enough to inform consistent practices among providers. The authors …

Patient and Device Selection in Pediatric MCS: A Review of Current Consensus and Unsettled Questions Read More »

Juliana is happy and healthy after her heart transplant.

Finding Heart — Juliana’s Story

Patient Stories, Stories

At 11 days old, Juliana waited for a new heart while her mother, Riki, fought breast cancer. Together as mother and daughter, they faced unexpected challenges, braved mounting treatments, endured long waits and recovery. Now, Riki shares their story in thanks to the community of support they found along the way.