Cardiology 2024 – CHOP Conference
SAVE THE DATE for the ACTION Meeting at CHOP’s Cardiology 2024 conference in Scottsdale, AZ
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Clinical Outcomes of SARS-CoV-2 Infection in Pediatric Patients on Ventricular Assist Device Support: An Action Registry Analysis
Abstract Adult patients on left ventricular assist device (LVAD) support have increased morbidity and mortality after severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection. There are no reported clinical data describing outcomes among pediatric patients on ventricular assist device (VAD) support infected with SARS-CoV-2. We conducted a retrospective study using the Advanced Cardiac Therapies Improving
The Pulse — October 2023
Happy Fall to All!
We had a successful meeting in St. Louis during the International HF/VAD Summit, and it was great to see so many of you in person! We brainstormed new ideas for QI/Research projects, clinical trials, education projects, advocacy efforts, and ways to improve data collection and project participation. We also played ACTION Trivia — did you know ACTION now has 66 sites in North America and has 27 manuscripts published since 2019? We are starting to plan for our next in-person meeting, which will be at CHOP in February 2024. Details to follow soon…
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ACTION @ 2023 AHA Scientific Sessions
Support Scott Auerbach, et al. at the 2023 AHA Scientific Session in November! See more details here
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ACTION & ICCAC Networking Happy Hour
Join ICCAC & ACTION before the International Pediatric VAD and Heart Failure Summit for a Networking Happy Hour on Thursday, September 21st from7–9 pm at Brennan’s 316 N Euclid Ave, St. Louis, MO 63108 Appetizers will be provided.
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Muscular Dystrophy Resource Tools
We’re excited to introduce these valuable tools and resources, designed to empower and inform those navigating the challenges of Muscular Dystrophy. Stay tuned to see how ACTION is working to educate and improve outcomes for our patients with Muscular Dystrophy. Infosheets Muscular Dystrophy: An Introduction to Heart Failure Muscular Dystrophy: Common Medicines Muscular Dystrophy: Progression
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PediMag™ & CentriMag™ OPS
Check out the newest One Page Summary (OPS) featuring the PediMag™ & CentriMag™. This OPS includes an overview of the device’s pump settings, cannulation strategies, system components, bedside issues and backup equipment, as well as how to perform a device assessment, blood pressure info and potential emergency care.
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First Pediatric Cardiac Device IDE Trial (Berlin Heart EXCOR® Active Driver) has Completed Enrollment Using the ACTION Registry
ACTION, in conjunction with Berlin Heart, Inc., launched the first prospective FDA regulated device trial using a pediatric ventricular assist device (VAD) registry in November 2022. Enrollment in the trial has been completed as of August 11, 2023, just 10 months after launch.
Successful Implementation of Telehealth Visits in the Paediatric Heart Failure and Heart Transplant Population
Abstract Advanced Cardiac Therapies Improving Outcomes Network (ACTION) and Pediatric Heart Transplant Society (PHTS) convened a working group at the beginning of 2020 during the COVID-19 pandemic, with the aim of using telehealth as an alternative medium to provide quality care to a high-acuity paediatric population receiving advanced cardiac therapies. An algorithm was developed to
