The Pulse — July 2023

We hope you are enjoying your summer vacations and finding time to soak up the longer sunnier days of the year with your families!
Looking ahead to the Fall, we are working with several committees to prepare new projects for launch. Some of these projects include a new Discharge Bundle for VAD patients and new interventions for the Fontan Referral project. We have also been working diligently to increase enrollment and data entry in our heart failure and muscular dystrophy registries. This critical data will help support the development of future projects. We appreciate everyone’s efforts throughout the busy summer to keep our important ACTION work moving along!

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Taking ACTION: A Prognostic Tool for Pediatric Ventricular Assist Device Mortality

Abstract We sought to develop a contemporary risk assessment tool for use in pediatric ventricular assist device (VAD) candidates to estimate risk for mortality on the device using readily available preimplantation clinical data. Training and testing datasets were created from Advanced Cardiac Therapies Improving Outcomes Network (ACTION) registry data on patients supported with a VAD

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