The Pulse - January 2024

The Pulse — January 2024

Happy New Year! We hope you enjoyed the Holiday Season and are energized for a new year! We wrapped 2023 with the launch of several exciting projects, such as the HeartMate 3TM Discharge Bundle and Heart Healthy Video Series, we continued access to the Berlin Heart Active Driver under the extended trial, and we published new ACTION research. Looking ahead this year we have been meeting individually with all ACTION sites to ensure successful engagement in ACTION and highlight membership benefits for each center. We are excited to expand quality improvement, education, research, and best practice initiatives across the network, as well as engage with Global centers and increase advocacy efforts in the pediatric heart failure space. Reach out with any new ideas for the year ahead. Thank you for your continued efforts!

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12th Annual Utah Cardiac Recovery Symposium (U-CARS)

See event website https://www.actionlearningnetwork.org/wp-admin/edit.php?post_type=tribe_events The 2024 U-CARS symposium will be hosted in person at the Salt Lake City Marriot University Park, located on the University of Utah campus in scenic Salt Lake City, Utah. The objective of this conference is to bring thought leaders together to exchange ideas, debate paradigms, and share information directly focused on issues

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Heart Healthy Video Series

We’re excited to announce our Heart Healthy Video Series!  Brought to you by the ACTION team, starring Justine Shertzer, a pediatric exercise physiologist and a member of ACTION, and Julian Lerner, an actor, singer, musician, and ACTION Ambassador.   These videos are intended to be used by both healthy kids and heart patients, under the

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Defying the Odds: Riley’s Life with Duchenne

On any given day, you may find Riley watching live sports in his home state of Montana. You may not know that Riley has been living with Duchenne Muscular Dystrophy since he was 3 years old. With his family’s fierce support, he’s lived wholeheartedly despite the challenges of his condition. From intensive heart transplant surgery to obtaining a college degree, Riley follows his mother Nina’s advice: that a “life is meant to be lived.”

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Reducing donor acceptance practice variation – Learnings from a discussion forum

Although waitlist mortality is unacceptably high, nearly half of donor heart offers are rejected by pediatric heart transplant centers. ACTION and PHTS convened a multi-institutional donor decision discussion forum (DDDF) aimed at assessing donor acceptance practices and reducing practice variation.

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