Ventricular assist device (VAD) options vary for children in different weight groups. This study evaluates contemporary device usage and outcomes for children based on weight.
It was great to see many of you at ISHLT this month! Congratulations to the many authors and co-authors involved in the ACTION abstracts shared at ISHLT (details below).
We had over 100 members at the ACTION meeting who worked together to align Adverse Event definitions and learn about our new initiative—ACTION Global. The launch of ACTION Global is an expanded effort to involve more international sites with an end goal of improving patient outcomes globally by sharing data and practices around the world.
The Pulse — April 2023 Read More »
Excellent outcomes, for our patients and families, remains the cornerstone of ACTION. By bidirectional sharing of experiences across the globe, we will bring new knowledge and therapies to the bedside,
ACTION is Growing! Read More »
Missed us at ISHLT? Download the full slide deck to see what we covered.
Spring 2023 Meeting Read More »
Prompted by needs and interests of our Families in ACTION (FACT) Committee, ACTION recently joined forces with a fellow Cardiac Networks United organization, the Cardiac Neurodevelopmental Outcome Collaborative to: develop patient
Hearts & Minds: Neurodevelopment in Pediatric Heart Failure and VAD Patients Read More »
Individuals with Fontan circulation are at risk of late mortality from both cardiac and noncardiac causes. Despite the known risk of mortality, referral indications for advanced heart failure care vary
Check out ACTION’s Pediatric Heart Failure Toolkit. Download patient and care team friendly handouts below. Providers For more tools, including a Heart Failure Daily Communication Checklist and a Heart Failure Discharge Plan login
Pediatric Heart Failure Toolkit Read More »
Check out the newest One Page Summary (OPS) featuring the SynCardia (TAH-t). The OPS includes device size selection, components, function, settings and readings, as well as highlighting anticoagulation, blood pressure,
Patient- and proxy-reported outcomes (PROs) are an important indicator of healthcare quality but are underutilised in paediatric cardiac care. This ACTION study, Patient and parent-reported outcomes in paediatric ventricular assist
Happy Fall! We are looking forward to seeing you virtually during our Fall Meeting on Tuesday, November 8, from 1–5pm ET. Registration details are included below.
We have had a busy couple of months since our last newsletter in July, including the pilot launch of the Heart Failure registry, a successful Fontan Referral design meeting, and reaching over 1,000 patients entered into our VAD Registry. Join us for our Fall Meeting to see what’s coming for the rest of 2022!
The Pulse — January 2023 Read More »
