Muscular Dystrophy Resource Tools
We’re excited to introduce these valuable tools and resources, designed to empower and inform those navigating the challenges of Muscular Dystrophy. Stay tuned to see how ACTION is working to …
PediMag™ & CentriMag™ OPS
Check out the newest One Page Summary (OPS) featuring the PediMag™ & CentriMag™. This OPS includes an overview of the device’s pump settings, cannulation strategies, system components, bedside issues and backup equipment, …
First Pediatric Cardiac Device IDE Trial (Berlin Heart EXCOR® Active Driver) has Completed Enrollment Using the ACTION Registry
ACTION, in conjunction with Berlin Heart, Inc., launched the first prospective FDA regulated device trial using a pediatric ventricular assist device (VAD) registry in November 2022. Enrollment in the trial has been completed as of August 11, 2023, just 10 months after launch.
Berlin Heart EXCOR® Patient & Family Education Handbook Now Available in Spanish!
ACTION is proud to release our newest education material for patients and caregivers for the HVAD™ System.
Successful Implementation of Telehealth Visits in the Paediatric Heart Failure and Heart Transplant Population
Abstract Advanced Cardiac Therapies Improving Outcomes Network (ACTION) and Pediatric Heart Transplant Society (PHTS) convened a working group at the beginning of 2020 during the COVID-19 pandemic, with the aim …
The Pulse — July 2023
We hope you are enjoying your summer vacations and finding time to soak up the longer sunnier days of the year with your families!
Looking ahead to the Fall, we are working with several committees to prepare new projects for launch. Some of these projects include a new Discharge Bundle for VAD patients and new interventions for the Fontan Referral project. We have also been working diligently to increase enrollment and data entry in our heart failure and muscular dystrophy registries. This critical data will help support the development of future projects. We appreciate everyone’s efforts throughout the busy summer to keep our important ACTION work moving along!
Taking ACTION: A Prognostic Tool for Pediatric Ventricular Assist Device Mortality
Abstract We sought to develop a contemporary risk assessment tool for use in pediatric ventricular assist device (VAD) candidates to estimate risk for mortality on the device using readily available …
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From ACTION Patient to Summer Intern: Sam’s Story
You may recognize her as our homepage cover girl on the actionlearningnetwork.org website, but now all grown up, Sam is pursuing a biology and pre-med undergrad degree at Miami University. She wants to become a cardiologist to be able to deliver the same quality care she receive as a patient.
Expanding Use of the HeartMate 3 VAD in Pediatric and Adult Patients within the ACTION
ACTION set forth to report current outcomes in patients supported with the HeartMate 3 ventricular assist device in a multicenter learning network.
2022 ACT-VAD Registry Data Report
Tthe 2022 ACT-VAD Registry Data Report highlights our VAD registry data findings from April 2018 thru December 2022.
