A multi-center ACTION registry study found that while VAD removal following heart recovery is rare in children (about 3%), nearly three-quarters of those who underwent explantation remained alive without needing a transplant or new device at two-year follow-up.
This multicenter analysis shows bivalirudin is an effective alternative to heparin for anticoagulation in pediatric mechanical circulatory support, with comparable bleeding and stroke outcomes.
We hope to see you soon! This special edition of The Pulse is focused on upcoming in-person meetings for the Spring and Summer! We hope to see you at any or all of these exciting events.
The Pulse — March 2026 Read More »
This multicenter analysis shows bivalirudin is an effective alternative to heparin for anticoagulation in pediatric mechanical circulatory support, with comparable bleeding and stroke outcomes.
Following a 2024 expert convening, a comprehensive clinical protocol was created to support VAD and transplant candidacy in Duchenne muscular dystrophy, translating consensus into real-world implementation.
This study evaluates the progression of the distal aorta in patients with acute type A aortic dissection complicated by malperfusion syndrome who were treated with endovascular fenestration/stenting followed by delayed open aortic repair, finding that although these patients had faster distal aortic growth, their long-term survival and reoperation rates were similar to those without malperfusion syndrome.
Check out the newest Harmonized Protocol for Providers caring for VAD and Heart Transplantation patients with Duchenne Muscular Dystrophy.
VAD and Heart Transplantation in DMD: Guidance for Providers Read More »
Early data from 500 males in the ACTION dystrophinopathy registry show substantial cardiac involvement and broad use of cardioprotective therapies. Ongoing follow-up will define the modern natural history of cardiomyopathy in dystrophinopathy.
At just 10 weeks old, Marylu survived cardiac arrest, multiple surgeries, and a rare diagnosis—emerging with a new heart and extraordinary strength. Her journey is a powerful testament to faith, courage, and miracles.
Faith, Fight, and a Second Heart: Marylu’s Story Read More »
What began as a Navy medic’s desire to heal became a lifelong mission to bring life-sustaining technology to patients in heart failure. As a driving force behind the HeartMate LVAD series, CentriMag, and PediMag systems, his leadership helped shape modern circulatory support and bring hope to countless patients worldwide.
Translating Vision into Reality: An Interview with Kurt Dasse, PhD Read More »
