Prompted by needs and interests of our Families in ACTION (FACT) Committee, ACTION recently joined forces with a fellow Cardiac Networks United organization, the Cardiac Neurodevelopmental Outcome Collaborative to: develop patient …
Hearts & Minds: Neurodevelopment in Pediatric Heart Failure and VAD Patients Read More »
Individuals with Fontan circulation are at risk of late mortality from both cardiac and noncardiac causes. Despite the known risk of mortality, referral indications for advanced heart failure care vary …
Check out ACTION’s Pediatric Heart Failure Toolkit. Download patient and care team friendly handouts below. Providers For more tools, including a Heart Failure Daily Communication Checklist and a Heart Failure Discharge Plan login …
Check out the newest One Page Summary (OPS) featuring the SynCardia (TAH-t). The OPS includes device size selection, components, function, settings and readings, as well as highlighting anticoagulation, blood pressure, …
Patient- and proxy-reported outcomes (PROs) are an important indicator of healthcare quality but are underutilised in paediatric cardiac care. This ACTION study, Patient and parent-reported outcomes in paediatric ventricular assist …
Happy Fall! We are looking forward to seeing you virtually during our Fall Meeting on Tuesday, November 8, from 1–5pm ET. Registration details are included below.
We have had a busy couple of months since our last newsletter in July, including the pilot launch of the Heart Failure registry, a successful Fontan Referral design meeting, and reaching over 1,000 patients entered into our VAD Registry. Join us for our Fall Meeting to see what’s coming for the rest of 2022!
Missed the Fall 2022 Meeting? We’ve put together an ACTION Anthology! See the videos below to catch up. Part 1 – Prologue, History, & Pre-Print Part 2 – Cooking, References …
ACTION Learning Network investigators recently published Ventricular Assist Device Outcomes in Infants and Children With Stage 1 Single Ventricle Palliation in the November 2022 issue of the ASAIO Journal. Examining …
Check out the Berlin Heart One Page Summary (OPS). This OPS includes pump settings and function, cannulation strategies, blood pump and system components, power sources, as well as highlighting anticoagulation, …
Purpose Cardiac disease results in significant morbidity and mortality in patients with muscular dystrophy (MD). Single centers have reported their ventricular assist device (VAD) experience in specific MDs and in …
