Heart of ACTION

Dystrophinopathy in ACTION: The first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective dystrophinopathy registry

Early data from 500 males in the ACTION dystrophinopathy registry show substantial cardiac involvement and broad use of cardioprotective therapies. Ongoing follow-up will define the modern natural history of cardiomyopathy in dystrophinopathy.

ACTION Publication Publications

Dystrophinopathy in ACTION: The first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective dystrophinopathy registry

November 19, 2025

Patient Stories Stories

Faith, Fight, and a Second Heart: Marylu’s Story

November 19, 2025

Innovators Stories

Translating Vision into Reality: An Interview with Kurt Dasse, PhD

November 6, 2025

Innovators Stories

The Heart of Innovation: Dr. Rich Wampler’s Journey from Loss to Life-Saving Discovery

November 6, 2025

News The Pulse

The Pulse — Nov 2025

November 5, 2025

News Updates

NEW! Impella Patient Education Handbook

October 24, 2025

ACTION Publication Publications

Use of SGLT2 inhibitors in pediatric heart failure: a multi-center study

October 6, 2025

ACTION Publication Publications

iDECIDE-VAD-PEDIATRIC: Development of a Decision Aid to Assist Children and Their Caregivers When Considering a Ventricular Assist Device

September 15, 2025

News Updates

Fontan ACTION Plan for Patients

September 11, 2025

News Updates

Cardio-Oncology Introduction

September 6, 2025

Patient Stories Stories

A Full-Circle Moment: 11 Years After Juliana’s Heart Transplant

August 15, 2025

ACTION Publication Publications

Critical care management of right ventricular failure in pediatric left ventricular assist devices: An advanced cardiac therapies improving outcomes network (ACTION) endorsed statement

August 4, 2025

News The Pulse

The Pulse — Aug 2025

August 1, 2025

ACTION Publication Publications

Contemporary Outcomes of Mechanical Circulatory Support Using Paracorporeal Continuous Flow Pump in Children: A Report From the ACTION Learning Network

July 20, 2025

ACTION Publication Publications

Multi-institutional outcomes of Impella use in pediatric patients: A brief communication from the ACTION Network

July 8, 2025

News Updates

Harmonized Protocols – Updated!

June 30, 2025

ACTION Publication Publications

Cardiac Medication Use in ACTION for Duchenne Muscular Dystrophy Cardiomyopathy

June 24, 2025

ACTION Publication Publications

Improving Pediatric Heart Failure Outcomes Through Collaboration and Innovation: The Current Status of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION)

June 12, 2025

ACTION Publication Publications

Ventricular Assist Device Use in Pediatric Restrictive and Hypertrophic Cardiomyopathy: An ACTION Registry Analysis

May 22, 2025

News The Pulse

The Pulse — April 2025

April 25, 2025

News Updates

Impella^®– One Page Summary (OPS)

April 24, 2025

ACTION Publication Publications

Practice Variation in Thromboprophylaxis Management of Outpatient Pediatric Cardiomyopathy Patients: Survey of ACTION Providers

April 5, 2025

ACTION Publication Publications

Capturing Physiologic Data in Children with Heart Failure Using Wearable Digital Technology: Lessons From Pilot Project

April 4, 2025

ACTION Publication Publications

The ACTION VAD registry: A collective five-year experience

April 2, 2025

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Heart of ACTION

Dystrophinopathy in ACTION: The first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective dystrophinopathy registry

Latest Highlights

Dystrophinopathy in ACTION: The first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective dystrophinopathy registry

Faith, Fight, and a Second Heart: Marylu’s Story

Translating Vision into Reality: An Interview with Kurt Dasse, PhD

The Heart of Innovation: Dr. Rich Wampler’s Journey from Loss to Life-Saving Discovery

The Pulse — Nov 2025

NEW! Impella Patient Education Handbook

Use of SGLT2 inhibitors in pediatric heart failure: a multi-center study

iDECIDE-VAD-PEDIATRIC: Development of a Decision Aid to Assist Children and Their Caregivers When Considering a Ventricular Assist Device

Fontan ACTION Plan for Patients

Cardio-Oncology Introduction

A Full-Circle Moment: 11 Years After Juliana’s Heart Transplant

Critical care management of right ventricular failure in pediatric left ventricular assist devices: An advanced cardiac therapies improving outcomes network (ACTION) endorsed statement

The Pulse — Aug 2025

Contemporary Outcomes of Mechanical Circulatory Support Using Paracorporeal Continuous Flow Pump in Children: A Report From the ACTION Learning Network

Multi-institutional outcomes of Impella use in pediatric patients: A brief communication from the ACTION Network

Harmonized Protocols – Updated!

Cardiac Medication Use in ACTION for Duchenne Muscular Dystrophy Cardiomyopathy

Improving Pediatric Heart Failure Outcomes Through Collaboration and Innovation: The Current Status of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION)

Ventricular Assist Device Use in Pediatric Restrictive and Hypertrophic Cardiomyopathy: An ACTION Registry Analysis

The Pulse — April 2025

Impella^®– One Page Summary (OPS)

Practice Variation in Thromboprophylaxis Management of Outpatient Pediatric Cardiomyopathy Patients: Survey of ACTION Providers

Capturing Physiologic Data in Children with Heart Failure Using Wearable Digital Technology: Lessons From Pilot Project

The ACTION VAD registry: A collective five-year experience

Looking for Something?

Catch up on the latest ACTION achievements.

We would love to add you to our The Pulse eNewsletter mail list!

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