Publications

Manuscripts Published
Survival comparison for renal replacement therapy in pediatric VAD patients versus those not on therapy, over one year.
2026

Outcomes of ventricular assist device placement in pediatric patients with renal dysfunction requiring dialysis: an ACTION registry analysis

September 21, 2026
Chart of concerns reported by adolescents living with a VAD at home, including emergencies, infection, and bleeding.
2026

“It’s Not Like My Old Life, But It’s Still Freedom”: An ACTION Learning Network Mixed Methods Analysis of the Adolescent Ventricular Assist Device Experience at Home

September 18, 2026
Comparison of pediatric VAD infection rates by device type: implanted, durable external, and temporary external.
2026

Prevalence and Risk Factors for Ventricular Assist Device-Associated Infection in Children: An Analysis ACTION Study

September 17, 2026
RVAD timing in pediatric BiVAD support
2026

Does Earlier Right Ventricular Assist Device Implant Confer a Survival Advantage

September 14, 2026
2026

Infectious Adverse Events in Pediatric Paracorporeal Ventricular Assist Devices: An Analysis of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Registry

September 10, 2026
2026

Safety of Inpatient and Outpatient Beta Blocker Initiation in Pediatric Heart Failure

September 9, 2026
2026

HeartMate 3 in Pediatric and Complex Populations: Physiologic Rationale, Patient Selection, and Management Strategies

August 6, 2026
2026

The Advanced Cardiac Therapies Improving Outcomes Network (ACTION): A Multicenter Registry and Learning Health System for Pediatric and Congenital Heart Disease Associated Heart Failure

August 4, 2026
2026

Use of SGLT2 Inhibitors in Dystrophin Deficient Cardiomyopathy: A Multi-center Study Using the ACTION Registry

August 1, 2026
Bridge to Candidacy VAD Patients
2026

Clinical Outcomes and Complications in Pediatric Ventricular Assist Devices Implanted as Bridge to Candidacy

July 23, 2026
2026

Explantation Of Durable Ventricular Assist Device For Myocardial Functional Recovery In Children: A Report From The ACTION Registry

June 23, 2026
2026

Prospective Multicenter Evaluation of a Novel Active Driving System for Pediatric Ventricular Assist Device Support

May 13, 2026
2026

Multicenter Registry Analysis of Bivalirudin for Primary Anticoagulation in Pediatric HeartMate 3 Recipients: ACTION Analysis

March 26, 2026
2026

Meeting Report: Expanding Access to Advanced Cardiac Therapies, Including Ventricular Assist Devices (VADs) and Heart Transplantation in Muscular Dystrophy

February 24, 2026
2026

Double Bridge to Heart Transplantation: Outcomes of Early vs Delayed Extra Corporeal Membrane Oxygenator Crossover in Pediatric Population

February 11, 2026
2025

Dystrophinopathy in ACTION: The first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective dystrophinopathy registry

November 19, 2025
2025

Use of SGLT2 inhibitors in pediatric heart failure: a multi-center study

October 6, 2025
2025

iDECIDE-VAD-PEDIATRIC: Development of a Decision Aid to Assist Children and Their Caregivers When Considering a Ventricular Assist Device

September 15, 2025
2025

Critical care management of right ventricular failure in pediatric left ventricular assist devices: An advanced cardiac therapies improving outcomes network (ACTION) endorsed statement

August 4, 2025
CentriMag
2025

Contemporary Outcomes of Mechanical Circulatory Support Using Paracorporeal Continuous Flow Pump in Children: A Report From the ACTION Learning Network

July 20, 2025
2025

Multi-institutional outcomes of Impella use in pediatric patients: A brief communication from the ACTION Network

July 8, 2025
2025

Cardiac Medication Use in ACTION for Duchenne Muscular Dystrophy Cardiomyopathy

June 24, 2025
2025

Improving Pediatric Heart Failure Outcomes Through Collaboration and Innovation: The Current Status of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION)

June 12, 2025
2025

Ventricular Assist Device Use in Pediatric Restrictive and Hypertrophic Cardiomyopathy: An ACTION Registry Analysis

May 22, 2025
2025

Practice Variation in Thromboprophylaxis Management of Outpatient Pediatric Cardiomyopathy Patients: Survey of ACTION Providers

April 5, 2025
2025

Capturing Physiologic Data in Children with Heart Failure Using Wearable Digital Technology: Lessons From Pilot Project

April 4, 2025
2025

The ACTION VAD registry: A collective five-year experience

April 2, 2025
2025

Bridging gaps in pediatric device development: The power of ACTION – a collaborative learning network

March 25, 2025
2025

Cardiac treatment for Duchenne muscular dystrophy: consensus recommendations from the ACTION muscular dystrophy committee

February 28, 2025
2025

Outcomes for Children With Congenital Heart Disease Undergoing Ventricular Assist Device Implantation: An ACTION Registry Analysis

January 8, 2025
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