Publications

Manuscripts Published
Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience
2024

Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience

December 10, 2024
2024

Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from ACTION

November 26, 2024
VADs Device Score
2024

Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Ventricular Assist Device Score

November 26, 2024
2024

Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation

October 28, 2024
2024

ACTION-ARC Pediatric and Adult Congenital Heart Disease Ventricular Assist Device Adverse Event Definitions-2023

October 15, 2024
2024

Mechanical Ventilation and Outcomes of Children Who Undergo Ventricular Assist Device Placement: 2014–2020 Linked Analysis From the Advanced Cardiac Therapies Improving Outcomes Network and Pediatric Cardiac Critical Care Consortium Registries

May 20, 2024
2024

Transcatheter Axial Pump Use in Pediatric Patients on Veno-Arterial Extracorporeal Membrane Oxygenation: An ACTION Collaborative Experience

May 20, 2024
2024

Outcomes of Intracorporeal Continuous and Paracorporeal Pulsatile Ventricular Assist Devices in Pediatric Patients 10–30 kg

May 20, 2024
2024

Multicenter outcomes for ventricular assist device support for failed stage II palliation

February 29, 2024
2024

Impact of HeartWare VAD discontinuation on the pediatric population: An ACTION registry analysis

February 23, 2024
2023

Outcomes after initial heart failure consultation in Fontan patients

December 7, 2023
2023

Reducing donor acceptance practice variation – Learnings from a discussion forum

November 14, 2023
2023

Clinical Outcomes of SARS-CoV-2 Infection in Pediatric Patients on Ventricular Assist Device Support: An Action Registry Analysis

October 31, 2023
Telehealth
2023

Successful Implementation of Telehealth Visits in the Paediatric Heart Failure and Heart Transplant Population

August 10, 2023
2023

Taking ACTION: A Prognostic Tool for Pediatric Ventricular Assist Device Mortality

July 25, 2023
2023

Expanding Use of the HeartMate 3 VAD in Pediatric and Adult Patients within ACTION

July 11, 2023
2023

Impact of Weight on Ventricular Assist Device Outcomes in Dilated Cardiomyopathy Patients in Pediatric Centers: An ACTION Registry Study

May 1, 2023
Teenager Fontan Referral
2023

Considerations for Advanced Heart Failure Consultation in Individuals With Fontan Circulation: Recommendations From ACTION

February 22, 2023
2023

Patient and Parent-Reported Outcomes in Paediatric VAD Support: A Multi-Center ACTION Learning Network Feasibility and Pilot Experience

February 2, 2023
2023

End-of-Life in Pediatric Patients Supported by Ventricular Assist Devices: A Network Database Cohort Study

January 1, 2023
2022

Ventricular Assist Device Outcomes in Infants and Children With Stage 1 Single Ventricle Palliation

November 29, 2022
2022

Initial Multicenter Experience with Ventricular Assist Devices in Children and Young Adults with Muscular Dystrophy: An ACTION Registry Analysis

November 1, 2022
2022

Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION

September 21, 2022
Patient and Device Selection in Pediatric MCS: A Review of Current Consensus and Unsettled Questions
2022

Patient and Device Selection in Pediatric MCS: A Review of Current Consensus and Unsettled Questions

April 29, 2022
2022

Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION

April 28, 2022
2021

Significant Variation in Exercise Recommendations for Youth With Cardiomyopathies or Fontan Circulation

September 27, 2021
2021

ISHLT Consensus Statement for the Selection and Management of Pediatric and CHD on VAD

September 2, 2021
2021

Learning networks in pediatric heart failure and transplantation

July 2, 2021
2021

Multisystem Inflammatory Syndrome MIS-C Associated with COVID-19 Anti-thrombosis Guideline of Care for Children

June 18, 2021
Medicines
2021

Establishing Baseline Metrics of Heart Failure Medication Use in Children

April 12, 2021
Looking for Something?