Publications

Manuscripts Published
2025

Dystrophinopathy in ACTION: The first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective dystrophinopathy registry

November 19, 2025
2025

Use of SGLT2 inhibitors in pediatric heart failure: a multi-center study

October 6, 2025
2025

iDECIDE-VAD-PEDIATRIC: Development of a Decision Aid to Assist Children and Their Caregivers When Considering a Ventricular Assist Device

September 15, 2025
2025

Critical care management of right ventricular failure in pediatric left ventricular assist devices: An advanced cardiac therapies improving outcomes network (ACTION) endorsed statement

August 4, 2025
CentriMag
2025

Contemporary Outcomes of Mechanical Circulatory Support Using Paracorporeal Continuous Flow Pump in Children: A Report From the ACTION Learning Network

July 20, 2025
2025

Multi-institutional outcomes of Impella use in pediatric patients: A brief communication from the ACTION Network

July 8, 2025
2025

Cardiac Medication Use in ACTION for Duchenne Muscular Dystrophy Cardiomyopathy

June 24, 2025
2025

Improving Pediatric Heart Failure Outcomes Through Collaboration and Innovation: The Current Status of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION)

June 12, 2025
2025

Ventricular Assist Device Use in Pediatric Restrictive and Hypertrophic Cardiomyopathy: An ACTION Registry Analysis

May 22, 2025
2025

Practice Variation in Thromboprophylaxis Management of Outpatient Pediatric Cardiomyopathy Patients: Survey of ACTION Providers

April 5, 2025
2025

Capturing Physiologic Data in Children with Heart Failure Using Wearable Digital Technology: Lessons From Pilot Project

April 4, 2025
2025

The ACTION VAD registry: A collective five-year experience

April 2, 2025
2025

Bridging gaps in pediatric device development: The power of ACTION – a collaborative learning network

March 25, 2025
2025

Cardiac treatment for Duchenne muscular dystrophy: consensus recommendations from the ACTION muscular dystrophy committee

February 28, 2025
2025

Outcomes for Children With Congenital Heart Disease Undergoing Ventricular Assist Device Implantation: An ACTION Registry Analysis

January 8, 2025
2024

Taking ACTION to detect myocarditis related to recombinant gene transfer therapy for Duchenne Muscular Dystrophy; Consensus recommendations for cardiac surveillance

December 30, 2024
2024

Over 100 Fontan Patients on Systemic Ventricular Assist Device Support: An ACTION Update

December 29, 2024
2024

Ventricular assist device implantation in children with a mechanical valve: An ACTION registry analysis

December 22, 2024
2024

Current state of neurodevelopmental and psychosocial care practices for paediatric patients with ventricular assist devices: an Advanced Cardiac Therapies Improving Outcomes Network and Cardiac Neurodevelopmental Outcome Collaborative collaborative survey

December 11, 2024
Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience
2024

Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience

December 10, 2024
2024

Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from ACTION

November 26, 2024
VADs Device Score
2024

Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Ventricular Assist Device Score

November 26, 2024
2024

Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation

October 28, 2024
2024

ACTION-ARC Pediatric and Adult Congenital Heart Disease Ventricular Assist Device Adverse Event Definitions-2023

October 15, 2024
2024

Mechanical Ventilation and Outcomes of Children Who Undergo Ventricular Assist Device Placement: 2014–2020 Linked Analysis From the Advanced Cardiac Therapies Improving Outcomes Network and Pediatric Cardiac Critical Care Consortium Registries

May 20, 2024
2024

Transcatheter Axial Pump Use in Pediatric Patients on Veno-Arterial Extracorporeal Membrane Oxygenation: An ACTION Collaborative Experience

May 20, 2024
2024

Outcomes of Intracorporeal Continuous and Paracorporeal Pulsatile Ventricular Assist Devices in Pediatric Patients 10–30 kg

May 20, 2024
2024

Multicenter outcomes for ventricular assist device support for failed stage II palliation

February 29, 2024
2024

Impact of HeartWare VAD discontinuation on the pediatric population: An ACTION registry analysis

February 23, 2024
2023

Outcomes after initial heart failure consultation in Fontan patients

December 7, 2023
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