Jennie McAllister
Jennie McAllister, MS, CPNP, DNP
Columbia University Medical Center
Improving Treatment & Outcomes for Children with Muscular Dystrophy
Patients with Muscular Dystrophy may develop cardiac dysfunction and may need advanced cardiac therapies. These therapies may include medications, ventricular assist devices or new technology for monitoring. Quality improvement and research methodologies are being used to improve the cardiac outcomes of this patient group.
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Fontan Referral for Advanced Care
Patients with Fontan physiology may develop symptoms that require life-saving cardiac care such heart failure medicines, VAD support and/or transplantation. ACTION is working on timely referral for this cohort which is extremely important for optimal outcomes.
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Education for Patients, Families, and Providers
We continually work to improve and develop educational resources on heart failure and advanced therapies, such as VADs. Our materials, both written and electronic, are designed for a wide variety of user groups including patients, caregivers, and clinical providers.
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Harmonizing Care: Decreasing Unnecessary Variation in Care
Decreasing unnecessary variation in care has been extremely important to best outcomes. We learn from each other and alter care as a network.
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Innovative Technologies for Monitoring Children with Heart Failure
We are using innovation to monitor our patients more effectively. Projects include the use of wearable devices and the off-label use of the CardioMEMsTM device and electronic collection of patient reported outcomes.
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Preparing Patients for Transplant & Maximizing Donor Acceptance
Transplant outcomes are improved if patients are strong going into the surgery. We have many projects focused on the right time for transplantation. Donor availability is an ACTION priority and can be improved by sharing experiences on donor acceptance and perfecting best donor recipient size match.
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Prospective Trials Using a Registry as the Platform
The ACTION registry is being used to conduct prospective trials. Currently the Berlin Active Driver is being studied at 20 ACTION sites.
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Real World Evidence to Broaden Treatment Options for Children with Heart Failure
Using data collected by the providers we are able to evaluate safety of medicines and devices. This is a cost effective and efficient way to bring new therapies to the bedside.
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Decreasing Complications After Ventricular Assist Device (VAD) Implant
Some heart failure patients may need a VAD to pump their blood. These devices can be associated with adverse events such as strokes, bleeding, or infection. Using quality improvement and research methodology we’ve decreased stroke rates by 50% and continue to focus on decreasing all VAD therapy complications.
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