K.S., Author at Advanced Cardiac Therapies Improving Outcomes Network

The Pulse — October 2022

Happy Fall! We are looking forward to seeing you virtually during our Fall Meeting on Tuesday, November 8, from 1–5pm ET. Registration details are included below.
We have had a busy couple of months since our last newsletter in July, including the pilot launch of the Heart Failure registry, a successful Fontan Referral design meeting, and reaching over 1,000 patients entered into our VAD Registry. Join us for our Fall Meeting to see what’s coming for the rest of 2022!

The Pulse — October 2022 Read More »

Melissa McQueen

Member of the Month, Stories

Melissa McQueen

Executive Director / Founder Transplant Families

Melissa McQueen Read More »

Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION

ACTION Publication, Publications

The results of an ACTION-wide survey of pediatric cardiology providers are detailed in the latest ACTION publication, Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD):

Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION Read More »

Ideas to Improve Bivalrudin Monitoring OPS

News, Updates

Check out the newest One Page Summary (OPS) aimed to provide clear ideas to improve bivalirudin monitoring. It includes three ways to initiate infusion, plus what to look for if

Ideas to Improve Bivalrudin Monitoring OPS Read More »

The Pulse — July 2022

News, The Pulse

It has been a few months since our last newsletter. We are trying a new communication method: a “Forecast” email goes out every two weeks with important dates, meetings and resources; and newsletter, which now include data visualizations, will be distributed quarterly.

The Pulse — July 2022 Read More »

Parent Project Muscular Dystrophy (PPMD) funds ACTION to expand Muscular Dystrophy collaboration efforts

News, Press Release

ACTION receives $2 million grant from Parent Project Muscular Dystrophy (PPMD) to expand muscular dystrophy focused research and quality improvement initiatives

Parent Project Muscular Dystrophy (PPMD) funds ACTION to expand Muscular Dystrophy collaboration efforts Read More »

Jennie McAllister

Member of the Month, Stories

Jennie McAllister, MS, CPNP, DNP

Columbia University Medical Center

Jennie McAllister Read More »

Improving Treatment & Outcomes for Children with Muscular Dystrophy

ACTION Projects

Patients with Muscular Dystrophy may develop cardiac dysfunction and may need advanced cardiac therapies. These therapies may include medications, ventricular assist devices or new technology for monitoring. Quality improvement and research methodologies are being used to improve the cardiac outcomes of this patient group.

Improving Treatment & Outcomes for Children with Muscular Dystrophy Read More »

Fontan Referral for Advanced Care

ACTION Projects

Patients with Fontan physiology may develop symptoms that require life-saving cardiac care such heart failure medicines, VAD support and/or transplantation. ACTION is working on timely referral for this cohort which is extremely important for optimal outcomes.

Fontan Referral for Advanced Care Read More »

Education for Patients, Families, and Providers

ACTION Projects

We continually work to improve and develop educational resources on heart failure and advanced therapies, such as VADs. Our materials, both written and electronic, are designed for a wide variety of user groups including patients, caregivers, and clinical providers.

Education for Patients, Families, and Providers Read More »

K.S.

The Pulse — October 2022

Melissa McQueen

Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION

Ideas to Improve Bivalrudin Monitoring OPS

The Pulse — July 2022

Parent Project Muscular Dystrophy (PPMD) funds ACTION to expand Muscular Dystrophy collaboration efforts

Jennie McAllister

Improving Treatment & Outcomes for Children with Muscular Dystrophy

Fontan Referral for Advanced Care

Education for Patients, Families, and Providers

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