Learning networks in pediatric heart failure and transplantation

ACTION Publication, Publications

“Learning networks in pediatric heart failure and transplantation” was published June 17, 2021 in Pediatric Transplantation. This ACTION publication defines “learning networks” and how they’re different from traditional clinical research collaboratives. The authors highlight exemplary  learning networks in the field of pediatric heart failure and transplantation, with particular attention given to ACTION. ACTION’s mission, goals, […]

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Psychological Outcomes in Pediatric Patients with VADs and Their Families

Other Publications, Publications

“Psychological Outcomes in pediatric patients with ventricular assist devices and their families: A systematic review” was published in Pediatric Transplantation on Mar 11, 2021.  This systematic review of literature identified studies utilizing both quantitative and qualitative measures of psychosocial health in pediatric VAD patients and their families.  Key takeaways: Since 2010, only 16 studies were

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Stroke in Pediatric VAD Patients: A Pediamacs Registry Analysis

Other Publications, Publications

Cerebrovascular accidents (CVA) are a common problem in pediatric VAD support. This Pedimacs analysis investigates rates, risk factors, and outcomes of CVA in pediatric patients supported on VAD: “Stroke in Pediatric Ventricular Assist Device Patients: A Pediamacs Registry Analysis.” It was published March 12, 2021 in The Journal of Heart and Lung Transplantation. The researchers

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Outcomes of Children Bridged to Heart Transplantation with VADs

Other Publications, Publications

This landmark Pediatric Heart Transplant Society study, “Outcomes of children bridged to heart transplantation with ventricular assist devices: a multi-institutional study,” was published in May 2006 in Circulation, a journal by the American Heart Association. This groundbreaking work showed that VADs can be successfully used in kids and even their early outcomes were far superior

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A Novel Method of Donor‒Recipient Size Matching in Pediatric Heart Transplantation

Other Publications, Publications

Did you know the second most common reason for refusal of donor hearts in pediatric heart transplantation is donor size mismatch? Donor-to-recipient size matching is almost exclusively weight-based, but there is little to no evidence that validates weight as a reliable surrogate of cardiac size. Another size matching option is a case-by-case segmentation of total

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Greater Admissions, Mortality, and Cost of Heart Failure in ACHD

Other Publications, Publications

This study, published December 23, 2020 in Heart, compared outcomes and resource use among heart failure in adults with congenital heart disease and heart failure (ACHD-HF) vs. no ACHD: “Greater admissions, mortality and cost of heart failure in adults with congenital heart disease.” Researchers compared outcomes, emergency department (ED) and hospital resource use, and advanced

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Right Heart Failure

Right Heart Failure Considerations in Pediatric VADs

ACTION Publication, Publications

Right heart failure (RHF) after LVAD implantation can negatively impact a child’s transplant candidacy and survival. Successful LVAD outcomes require anticipation, prevention, early identification, and management of RHF, but there is little pediatric-focused evidence to guide practice. This review summarizes the existing literature and describes ACTION’s harmonized approach to RHF: “Right heart failure considerations in

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