Prompted by needs and interests of our Families in ACTION (FACT) Committee, ACTION recently joined forces with a fellow Cardiac Networks United organization, the Cardiac Neurodevelopmental Outcome Collaborative to:
- develop patient and family resources specific to neurodevelopment in pediatric heart failure and VAD patients, and
- better understand current practices among ACTION sites specific to neurodevelopmental care and education.
This cross-network collaboration brought together experts in pediatric psychology, neuropsychology, cardiology, nursing, and more to address this important aspect of care for patients and families.
Hearts & Minds: Neurodevelopment in Patients with Heart Failure & VADs
Disclaimer: The ACTION network is focused on quality improvement efforts such as harmonizing best practice protocols, disseminating them among institutions, and helping centers to improve care practices at the local level. This protocol was developed as a consensus tool for pediatric VAD programs. The information in the protocols are based on center practices, individual opinions, experiences, and, where available, published literature. Centers may choose to adapt this protocol to include in their center-specific protocols with reference to ACTION with the understanding that these are meant as guidelines and not standard of care.