Publications

Manuscripts Published
2023

Reducing donor acceptance practice variation – Learnings from a discussion forum

November 14, 2023
2023

Clinical Outcomes of SARS-CoV-2 Infection in Pediatric Patients on Ventricular Assist Device Support: An Action Registry Analysis

October 31, 2023
Telehealth
2023

Successful Implementation of Telehealth Visits in the Paediatric Heart Failure and Heart Transplant Population

August 10, 2023
2023

Taking ACTION: A Prognostic Tool for Pediatric Ventricular Assist Device Mortality

July 25, 2023
2023

Expanding Use of the HeartMate 3 VAD in Pediatric and Adult Patients within ACTION

July 11, 2023
2023

Impact of Weight on Ventricular Assist Device Outcomes in Dilated Cardiomyopathy Patients in Pediatric Centers: An ACTION Registry Study

May 1, 2023
Teenager Fontan Referral
2023

Considerations for Advanced Heart Failure Consultation in Individuals With Fontan Circulation: Recommendations From ACTION

February 22, 2023
2023

Patient and Parent-Reported Outcomes in Paediatric VAD Support: A Multi-Center ACTION Learning Network Feasibility and Pilot Experience

February 2, 2023
2023

End-of-Life in Pediatric Patients Supported by Ventricular Assist Devices: A Network Database Cohort Study

January 1, 2023
2022

Ventricular Assist Device Outcomes in Infants and Children With Stage 1 Single Ventricle Palliation

November 29, 2022
2022

Initial Multicenter Experience with Ventricular Assist Devices in Children and Young Adults with Muscular Dystrophy: An ACTION Registry Analysis

November 1, 2022
2022

Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION

September 21, 2022
Patient and Device Selection in Pediatric MCS: A Review of Current Consensus and Unsettled Questions
2022

Patient and Device Selection in Pediatric MCS: A Review of Current Consensus and Unsettled Questions

April 29, 2022
2022

Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION

April 28, 2022
2021

Significant Variation in Exercise Recommendations for Youth With Cardiomyopathies or Fontan Circulation

September 27, 2021
2021

ISHLT Consensus Statement for the Selection and Management of Pediatric and CHD on VAD

September 2, 2021
2021

Learning networks in pediatric heart failure and transplantation

July 2, 2021
2021

Multisystem Inflammatory Syndrome MIS-C Associated with COVID-19 Anti-thrombosis Guideline of Care for Children

June 18, 2021
Medicines
2021

Establishing Baseline Metrics of Heart Failure Medication Use in Children

April 12, 2021
Right Heart Failure
2021

Right Heart Failure Considerations in Pediatric VADs

March 23, 2021
Berlin Heart Patient
2021

Berlin Heart EXCOR and ACTION Post-Approval Surveillance Study Report

March 19, 2021
2021

Systemic VAD Support in Fontan Patients: A Report by ACTION

March 16, 2021
HVAD System
2021

HVAD Usage and Outcomes in the Current Pediatric Ventricular Assist Device Field: An ACTION Analysis

March 12, 2021
2021

Variation in Cardiac Rehabilitation for Pediatric VAD Recipients Across North America

March 9, 2021
2020

ABCs of Stroke Prevention

December 22, 2020
2020

Discharge and Readmissions After Ventricular Assist Device Placement in the US Pediatric Hospitals

November 12, 2020
2020

Heart failure in children: Priorities and approach of the ACTION collaborative

November 10, 2020
2020

A Coordinated Approach to Improving Pediatric Heart Transplant Waitlist Outcomes: A Summary of the ACTION November 2019 Waitlist Outcomes Committee Meeting

September 28, 2020
2020

The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative

April 1, 2020
2020

Early experience with the HeartMate 3 continuous-flow ventricular assist device in pediatric patients and patients with congenital heart disease

February 6, 2020
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