Decreasing unnecessary variation in care has been extremely important to best outcomes. We learn from each other and alter care as a network.
Harmonizing Care: Decreasing Unnecessary Variation in Care Read More »
We are using innovation to monitor our patients more effectively. Projects include the use of wearable devices and the off-label use of the CardioMEMsTM device and electronic collection of patient reported outcomes.
Innovative Technologies for Monitoring Children with Heart Failure Read More »
Transplant outcomes are improved if patients are strong going into the surgery. We have many projects focused on the right time for transplantation. Donor availability is an ACTION priority and can be improved by sharing experiences on donor acceptance and perfecting best donor recipient size match.
Preparing Patients for Transplant & Maximizing Donor Acceptance Read More »
The ACTION registry is being used to conduct prospective trials. Currently the Berlin Active Driver is being studied at 20 ACTION sites.
Prospective Trials Using a Registry as the Platform Read More »
Using data collected by the providers we are able to evaluate safety of medicines and devices. This is a cost effective and efficient way to bring new therapies to the bedside.
Real World Evidence to Broaden Treatment Options for Children with Heart Failure Read More »
Some heart failure patients may need a VAD to pump their blood. These devices can be associated with adverse events such as strokes, bleeding, or infection. Using quality improvement and research methodology we’ve decreased stroke rates by 50% and continue to focus on decreasing all VAD therapy complications.
Decreasing Complications After Ventricular Assist Device (VAD) Implant Read More »
Focused on improving the care of patients with heart dysfunction or heart failure. Using both quality improvement and research methodology we are focused on improving care team communication, goal directed medical therapy (GDMT), quality of life and myocardial recovery.
Improving Treatment Options & Outcomes for Children with Heart Dysfunction Read More »
Adult and pediatric surgery patients may develop signs and symptoms of heart failure or other organ diseases due to their Fontan circulation. These patients may need treatment such as cardiac medicines, mechanical devices, or transplantation.
Fontan Circulatory Failure Read More »
Patients with Muscular Dystrophy (MD) have weakened muscles; this also includes their heart muscle. These patients may develop signs and symptoms of heart failure and may need treatment such as cardiac medicines, mechanical devices, or advanced treatments.
Muscular Dystrophy Read More »
Some children with Congenital Heart Disease (CHD) may develop signs and symptoms of heart failure—these patients will need routine monitoring and may need treatment such as cardiac medicines, mechanical devices, or transplantation.
Congenital Heart Disease Read More »
