The results of an ACTION-wide survey of pediatric cardiology providers are detailed in the latest ACTION publication, Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): […]
“Outcomes After Initial Heart Failure Consultation in Fontan Patients” SHARON CHEN, ET AL. Download the Abstract
“The Initial Analysis Of Infectious Adverse Events In Pediatric Ventricular Assist Devices Reported To The Action Registry” NEHA BANSAL, ET AL Download the Abstract
Join us for a virtual clinician-focused education event featuring “in real life”(IRL) Berlin Heart EXCOR® patient care.
IRL VADS: Berlin Heart EXCOR® Read More »
Some heart failure patients may need a VAD to pump their blood. These devices can be associated with adverse events such as strokes, bleeding, or infection. Using quality improvement and research methodology we’ve decreased stroke rates by 50% and continue to focus on decreasing all VAD therapy complications.
Decreasing Complications After Ventricular Assist Device (VAD) Implant Read More »
Join us for a virtual clinician-focused education event featuring “in real life”(IRL) Berlin Heart EXCOR® patient care.
IRL VADS: HeartMate 3™ LVAD Read More »
VAD support for patients with Fontan circulatory failure is increasing, yet outcomes are largely unknown. Published on Nov. 21, 2021, Systemic ventricular assist device support of the Fontan circulation yields
Though pediatric VAD use is increasing, data around outcomes related to patient treatment and device selection decisions is not yet robust enough to inform consistent practices among providers. The authors
Published on March 5, 2022, Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION focused on characterizing strokes in children with ventricular assist devices. This review included
Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION Read More »
From the moment Raylan was born, he fought for his life. Born with cardiomyopathy, Raylan was placed on the transplant list at seven weeks old. His parents, Bonnie and Craig, could only sit and wait for answers about their baby. After agonizing challenges, numerous roadblocks, and more than a few long nights, Bonnie and Craig brought their baby home and found a new community along the way.
A New Heart, A New Community: Raylan’s Story Read More »
