One-in-six pediatric VAD patients die while receiving device support, with death occurring soon after implant and usually from noncardiac causes. Aggressive interventions are common at the end-of-life. The ACTION Registry data should inform future practices to promote informed patient/family and clinician decision-making to hopefully reduce suffering at the end-of-life.
ACTION Learning Network investigators recently published Ventricular Assist Device Outcomes in Infants and Children With Stage 1 Single Ventricle Palliation in the November 2022 issue of the ASAIO Journal. Examining
Check out the Berlin Heart One Page Summary (OPS). This OPS includes pump settings and function, cannulation strategies, blood pump and system components, power sources, as well as highlighting anticoagulation,
Purpose Cardiac disease results in significant morbidity and mortality in patients with muscular dystrophy (MD). Single centers have reported their ventricular assist device (VAD) experience in specific MDs and in
Happy Fall! We are looking forward to seeing you virtually during our Fall Meeting on Tuesday, November 8, from 1–5pm ET. Registration details are included below.
We have had a busy couple of months since our last newsletter in July, including the pilot launch of the Heart Failure registry, a successful Fontan Referral design meeting, and reaching over 1,000 patients entered into our VAD Registry. Join us for our Fall Meeting to see what’s coming for the rest of 2022!
The Pulse — October 2022 Read More »
The results of an ACTION-wide survey of pediatric cardiology providers are detailed in the latest ACTION publication, Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD):
“Outcomes After Initial Heart Failure Consultation in Fontan Patients” SHARON CHEN, ET AL. Download the Abstract
“The Initial Analysis Of Infectious Adverse Events In Pediatric Ventricular Assist Devices Reported To The Action Registry” NEHA BANSAL, ET AL Download the Abstract
Join us for a virtual clinician-focused education event featuring “in real life”(IRL) Berlin Heart EXCOR® patient care.
IRL VADS: Berlin Heart EXCOR® Read More »
Some heart failure patients may need a VAD to pump their blood. These devices can be associated with adverse events such as strokes, bleeding, or infection. Using quality improvement and research methodology we’ve decreased stroke rates by 50% and continue to focus on decreasing all VAD therapy complications.
Decreasing Complications After Ventricular Assist Device (VAD) Implant Read More »
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