Understanding Genetics
Genetics
Understanding Genetics Read More »
Patient Education
HeartMate 3™ LVAD Patient Education Handbook – UPDATED!
ACTION gives this three year old HeartMate 3™ LVAD Patient Education Handbook an update!
HeartMate 3™ LVAD Patient Education Handbook – UPDATED! Read More »
The Pulse — November 2024
Happy Fall to All! We had a successful meeting during the Single Ventricle Investigators Meeting in Denver this month, and it was great to see so many of you in person! Many new junior faculty and leaders of all experience levels have joined ACTION, and we are excited to continue our progress in the VAD, Heart Failure, Muscular Dystrophy, and Fontan spaces. We are grateful for the engagement and collaboration from all stakeholders that continue to excel our research, quality improvement, education, and advocacy efforts.
The Pulse — November 2024 Read More »
NEW! Heart Failure Success Patient & Family Education Handbook
ACTION is excited to release our first patient and family education handbook focused on Heart Failure Success!
NEW! Heart Failure Success Patient & Family Education Handbook Read More »
A new HeartMate 3™ LVAD Patient Education Handbook for ADULTS is Now Available!
ACTION is proud to release our newest patient education material for ADULT patients with the HeartMate 3™ LVAD.
A new HeartMate 3™ LVAD Patient Education Handbook for ADULTS is Now Available! Read More »
An Introduction to Myocarditis
Check out our educational handout on An Introduction to Myocarditis. Included is information about: What is Myocarditis? How is it diagnosed? What are the causes and the symptoms? Treatment options
An Introduction to Myocarditis Read More »
Fontan Surveillance Resource Tool
We’re excited to introduce this valuable roadmap resource tool to help provide recommendations on routine Fontan surveillance and when to refer for heart failure/transplant care. A referral does not necessarily mean
Fontan Surveillance Resource Tool Read More »
Muscular Dystrophy Resource Tools
We’re excited to introduce these valuable tools and resources, designed to empower and inform those navigating the challenges of Muscular Dystrophy. Stay tuned to see how ACTION is working to
Muscular Dystrophy Resource Tools Read More »
Hearts & Minds: Neurodevelopment in Pediatric Heart Failure and VAD Patients
Prompted by needs and interests of our Families in ACTION (FACT) Committee, ACTION recently joined forces with a fellow Cardiac Networks United organization, the Cardiac Neurodevelopmental Outcome Collaborative to: develop patient
Hearts & Minds: Neurodevelopment in Pediatric Heart Failure and VAD Patients Read More »
New HVAD™ System Patient Education Handbook!
ACTION is proud to release our newest education material for patients and caregivers for the HVAD™ System.
New HVAD™ System Patient Education Handbook! Read More »
