Muscular Dystrophy Archives - Advanced Cardiac Therapies Improving Outcomes Network

ACTION @ ISHLT ’23: Taking ACTION: Creation of a Prospective Registry of Boys with Dystrophinopathy and Ventricular Dysfunction to Define Cardiac Medication Use And Optimize Guideline Directed Medical Therapy

Oral Sessions : Rooms 405-407 More info from ISHLT

Initial multicenter experience with ventricular assist devices in children and young adults with muscular dystrophy: An ACTION registry analysis

Purpose Cardiac disease results in significant morbidity and mortality in patients with muscular dystrophy (MD). Single centers have reported their ventricular assist device (VAD) experience in specific MDs and in …

Initial multicenter experience with ventricular assist devices in children and young adults with muscular dystrophy: An ACTION registry analysis Read More »

Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION

ACTION Publication, Publications

The results of an ACTION-wide survey of pediatric cardiology providers are detailed in the latest ACTION publication, Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): …

Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION Read More »

Parent Project Muscular Dystrophy (PPMD) funds ACTION to expand Muscular Dystrophy collaboration efforts

News, Press Release

ACTION receives $2 million grant from Parent Project Muscular Dystrophy (PPMD) to expand muscular dystrophy focused research and quality improvement initiatives

Muscular Dystrophy

Patient Populations

Patients with Muscular Dystrophy (MD) have weakened muscles; this also includes their heart muscle. These patients may develop signs and symptoms of heart failure and may need treatment such as cardiac medicines, mechanical devices, or advanced treatments.