ACTION receives $2 million grant from Parent Project Muscular Dystrophy (PPMD) to expand muscular dystrophy focused research and quality improvement initiatives
Co-Presented with International Cardio Oncology Society (ICOS)
Heart Failure in Survivors of Childhood Cancer Read More »
Thought leaders in this emerging field will convene over the course of one week to share ideas, learn and create pathways to deliver cutting edge care to pediatric and young adult cerebrovascular and stroke patients.
5th Annual Aspen Conference on Pediatric Cerebrovascular Disease and Stroke Read More »
Join us for a virtual clinician-focused education event featuring “in real life”(IRL) Berlin Heart EXCOR® patient care.
IRL VADS: Berlin Heart EXCOR® Read More »
Patients with Muscular Dystrophy may develop cardiac dysfunction and may need advanced cardiac therapies. These therapies may include medications, ventricular assist devices or new technology for monitoring. Quality improvement and research methodologies are being used to improve the cardiac outcomes of this patient group.
Improving Treatment & Outcomes for Children with Muscular Dystrophy Read More »
Patients with Fontan physiology may develop symptoms that require life-saving cardiac care such heart failure medicines, VAD support and/or transplantation. ACTION is working on timely referral for this cohort which is extremely important for optimal outcomes.
Fontan Referral for Advanced Care Read More »
We continually work to improve and develop educational resources on heart failure and advanced therapies, such as VADs. Our materials, both written and electronic, are designed for a wide variety of user groups including patients, caregivers, and clinical providers.
Education for Patients, Families, and Providers Read More »
Decreasing unnecessary variation in care has been extremely important to best outcomes. We learn from each other and alter care as a network.
Harmonizing Care: Decreasing Unnecessary Variation in Care Read More »
We are using innovation to monitor our patients more effectively. Projects include the use of wearable devices and the off-label use of the CardioMEMsTM device and electronic collection of patient reported outcomes.
Innovative Technologies for Monitoring Children with Heart Failure Read More »
