Seth Hollander

Reducing donor acceptance practice variation – Learnings from a discussion forum

Although waitlist mortality is unacceptably high, nearly half of donor heart offers are rejected by pediatric heart transplant centers. ACTION and PHTS convened a multi-institutional donor decision discussion forum (DDDF) aimed at assessing donor acceptance practices and reducing practice variation.

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End-of-Life in Pediatric Patients Supported by Ventricular Assist Devices: A Network Database Cohort Study

One-in-six pediatric VAD patients die while receiving device support, with death occurring soon after implant and usually from noncardiac causes. Aggressive interventions are common at the end-of-life. The ACTION Registry data should inform future practices to promote informed patient/family and clinician decision-making to hopefully reduce suffering at the end-of-life.

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A Coordinated Approach to Improving Pediatric Heart Transplant Waitlist Outcomes: A Summary of the ACTION November 2019 Waitlist Outcomes Committee Meeting

This ACTION article, published in Pediatric Transplantation, describes the results of ACTION’s November 2019 Waitlist Outcomes Committee (WOC) meeting. The WOC committee used improvement science methodology to develop a six-step

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