Learning Network Archives - Advanced Cardiac Therapies Improving Outcomes Network

Current state of neurodevelopmental and psychosocial care practices for paediatric patients with ventricular assist devices: an Advanced Cardiac Therapies Improving Outcomes Network and Cardiac Neurodevelopmental Outcome Collaborative collaborative survey

Pediatric patients with ventricular assist devices often have access to neurodevelopmental providers in the inpatient setting, though supports vary by centre. Strengthening family neurodevelopmental education, referral processes, and family-centered psychosocial services may improve current neurodevelopmental/psychosocial care for pediatric ventricular assist device patients.

Current state of neurodevelopmental and psychosocial care practices for paediatric patients with ventricular assist devices: an Advanced Cardiac Therapies Improving Outcomes Network and Cardiac Neurodevelopmental Outcome Collaborative collaborative survey Read More »

Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation

ACTION Publication, Publications

ACTION and the Academic Research Consortium (ARC) aimed to harmonize definitions of pediatric and CHD AEs for use in clinical trials, registries, and regulatory evaluation.

Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation Read More »

First Pediatric Cardiac Device IDE Trial (Berlin Heart EXCOR® Active Driver) has Completed Enrollment Using the ACTION Registry

News, Press Release

ACTION, in conjunction with Berlin Heart, Inc., launched the first prospective FDA regulated device trial using a pediatric ventricular assist device (VAD) registry in November 2022. Enrollment in the trial has been completed as of August 11, 2023, just 10 months after launch.

First Pediatric Cardiac Device IDE Trial (Berlin Heart EXCOR® Active Driver) has Completed Enrollment Using the ACTION Registry Read More »

Parent Project Muscular Dystrophy (PPMD) funds ACTION to expand Muscular Dystrophy collaboration efforts

News, Press Release

ACTION receives $2 million grant from Parent Project Muscular Dystrophy (PPMD) to expand muscular dystrophy focused research and quality improvement initiatives

Parent Project Muscular Dystrophy (PPMD) funds ACTION to expand Muscular Dystrophy collaboration efforts Read More »

Learning networks in pediatric heart failure and transplantation

ACTION Publication, Publications

“Learning networks in pediatric heart failure and transplantation” was published June 17, 2021 in Pediatric Transplantation. This ACTION publication defines “learning networks” and how they’re different from traditional clinical research

Learning networks in pediatric heart failure and transplantation Read More »

Inspiring ACTION

Patient Stories, Stories

After a heartbreaking experience, Liam and his family inspired providers across the country to rethink how they communicate and learn from one another. Now, with the ACTION collaborative, every patient has access to a healthcare community working together to provide the best care throughout their heart health journey.

Inspiring ACTION Read More »

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