Happy Fall from ACTION! This edition of The Pulse covers a $910,000 Department of Defense award for Duchenne muscular dystrophy cardiac research, the relaunch of our VADs In Real Life (IRL) education series, ACTION at AHA Scientific Sessions 2026, new Harmonized Protocols and ACT-ONC resources, seven new publications, member spotlights, and open positions across ACTION centers.
The Pulse — September 2026 Read More »
We hope to see you soon! This special edition of The Pulse is focused on upcoming in-person meetings for the Spring and Summer! We hope to see you at any or all of these exciting events.
The Pulse — June 2026 Read More »
This quarterly meeting is open to everyone — all active centers, patient & family members, and industry collaborators! Join us to hear from leadership about current projects, upcoming initiatives, and opportunities
ACTION 4 ALL – September 2025 Meeting Read More »
This quarterly meeting is open to everyone — all active centers, patient & family members, and industry collaborators! Join us to hear from leadership about current projects, upcoming initiatives, and opportunities
ACTION 4 ALL – June 2025 Meeting Read More »
This quarterly meeting is open to everyone — all active centers, patient & family members, and industry collaborators! Join us to hear from leadership about current projects, upcoming initiatives, and opportunities
ACTION 4 ALL – March 2025 Meeting Read More »
We hope you are enjoying your summer vacations and finding time to soak up the longer sunnier days of the year with your families!
Looking ahead to the Fall, we are working with several committees to prepare new projects for launch. Some of these projects include a new Discharge Bundle for VAD patients and new interventions for the Fontan Referral project. We have also been working diligently to increase enrollment and data entry in our heart failure and muscular dystrophy registries. This critical data will help support the development of future projects. We appreciate everyone’s efforts throughout the busy summer to keep our important ACTION work moving along!
The Pulse — July 2023 Read More »
Missed the Fall 2022 Meeting? We’ve put together an ACTION Anthology! See the videos below to catch up. Part 1 – Prologue, History, & Pre-Print Part 2 – Cooking, References
Happy Fall! We are looking forward to seeing you virtually during our Fall Meeting on Tuesday, November 8, from 1–5pm ET. Registration details are included below.
We have had a busy couple of months since our last newsletter in July, including the pilot launch of the Heart Failure registry, a successful Fontan Referral design meeting, and reaching over 1,000 patients entered into our VAD Registry. Join us for our Fall Meeting to see what’s coming for the rest of 2022!
The Pulse — October 2022 Read More »
