This study surveyed pediatric heart failure practitioners across ACTION centers to understand thromboprophylaxis practices in children with cardiomyopathy. The survey explored decision-making factors and medication choices using three clinical vignettes: dilated cardiomyopathy (DCM), left ventricular non-compaction (LVNC), and restrictive cardiomyopathy (RCM).
A pilot study to evaluate the feasibility of using an Apple Watch and a custom app to collect physiologic and activity data from pediatric patients with heart failure. Data such as heart rate, activity levels, and clinical status were collected to explore the potential of wearable technology for improving pediatric heart failure management. The study aims to generate hypotheses for further research on wearable technology in pediatric heart failure care.
A report describing patient and device characteristics, and outcomes through 1-year post-VAD implant. The 5-year ACTION VAD experience highlights the growing collaboration in the pediatric VAD community and changes in clinical practice. More work is needed to improve survival and limit adverse outcomes, especially in younger patients.
The ACTION VAD registry: A collective five-year experience Read More »
Innovation in pediatric medical devices is limited by financial and regulatory barriers due to the small and heterogenous target population. Intentional design of the ACTION registry has mitigated regulatory and financial barriers to pediatric VAD innovation through the use of real-world evidence gathered through a learning network.
Join ACTION for “The Apixaban experience in the HM3 patient population” with featured speaker: Palak Shah, MD, from Inova Schar Heart and Vascular and ACTION Moderator: Christina VanderPluym, MD, from Boston Children’s Hospital
ACTION Webinar: The Apixaban experience in the HM3 patient population Read More »
See Haden Kim’s Featured Poster Presentation.
See Jon Edelson, MD’s Oral Presentation.
See Darren Turner, MD’s Oral Presentation.
See Rachel Harris, DO’s Oral Presentation.
See Jenna Murray, CPNP-AC, MPH’s Oral Presentation.
