The iDECIDE-VAD-PEDIATRIC decision aid was developed to help families and clinicians navigate the unique challenges of pediatric ventricular assist device implantation by promoting consistent, values-based, and equitable decision-making.
Check out our One Page Summary (OPS) featuring the Impella® Left CP and the Impella® 5.5 (with SmartAssist) for providers. It serves as a quick overview of the device, including, device selection, system components, display elements, waveforms, as well as highlighting anticoagulation, power sources and potential scenarios.
Fontan ACTION Plan for Patients Read More »
This quarterly meeting is open to everyone — all active centers, patient & family members, and industry collaborators! Join us to hear from leadership about current projects, upcoming initiatives, and opportunities
ACTION 4 ALL – September 2025 Meeting Read More »
A Holistic Strategy to Promote Functional Recovery PRESENTER Thushiha Logeswaran, MD Pediatric Heart Centre Giessen, Justus-Liebig University, Germany Register Now!
Pulmonary Artery Banding in Infants and Young Children with DCM Read More »
ACTION is excited to announce the launch of our newest initiative: Cardio-Oncology! This initiative will focus on supporting individuals whose cancer treatments may affect their hearts. Our first resource, created in partnership with the International Cardio-Oncology Society (IC-OS), is a Cardiotoxicity & Cancer informational handout designed for patients and families.
Cardio-Oncology Introduction Read More »
On the 11th anniversary of her daughter’s heart transplant, Riki reunited with the very doctors who made it possible. Once the youngest heart transplant patient at Texas Children’s Hospital, Juliana is now 11—spirited, thriving, and living proof of the gift of life.
A Full-Circle Moment: 11 Years After Juliana’s Heart Transplant Read More »
Right ventricular failure (RVF) after left ventricular assist device (LVAD) implantation is a major cause of morbidity and mortality. This review offers pediatric-focused guidance on perioperative RV management, emphasizing pathophysiology, hemodynamics, and targeted interventions to optimize outcomes.
We hope you are enjoying your summer vacations and finding time to rest and rejuvenate with your families! ACTION has been busy with new publications, tools, resources, and projects (see links and features below). We are thrilled to announce the launch of our new VAD Adverse Event Definitions! These new and updated definitions will help us capture events more accurately and efficiently. The DCC also streamlined fields, improved forms, and added instructional text throughout to make data entry easier and faster. Thanks to all those who worked on this important project! Lastly, we are now taking proposals for ISHLT 2026, see more details below on the submission process.
The Pulse — Aug 2025 Read More »
This multicenter study of 367 children from the ACTION network found that 78% had a positive outcome with paracorporeal continuous flow (pCF) mechanical support. Children with congenital heart disease had lower success rates and higher mortality than those without CHD.
In this multicenter retrospective study of 150 pediatric patients supported with the Impella device, 89.3% achieved positive clinical outcomes despite a 28% adverse event rate. Findings suggest a potential role for Impella in managing refractory advanced heart failure in children, particularly those with cardiomyopathy, transplant graft dysfunction, or congenital heart disease.
