|
Let's make 2025 our best year yet!We wrapped 2024 with the exciting announcement for the FDA expanded label of Johnson & Johnson MedTech’s Impella Support System to include treatment for certain children suffering from heart failure. Achievements like this would not be possible without the continued efforts and dedication of our
ACTION centers providing care to these patients, as well as entering, cleaning, and adjudicating the data. We also continued access to the Berlin Heart Active Driver under the extended trial, and we published many new ACTION manuscripts. Looking ahead this year, we are excited to launch new projects, and expand quality improvement, education, research, and best practice initiatives across the network. We look forward to engaging with more global centers and increasing advocacy efforts in the pediatric heart failure space. Please reach out with any new ideas for the year ahead. Thank you for your
continued efforts! Regards,
ACTION Executive Leadership
13th Annual Utah Cardiac Recovery Symposium (U-CARS)
February 20–21 | Salt Lake City, Utah
Conference Info
Cardiology 2025
28th Annual Update on Pediatric and Congenital Cardiovascular Disease
Children's Hospital of Philadelphia
February 19–23 | Orlando, FL
Conference Info ACTION Booth
Thursday & Friday, Feb. 20th & 21s
Salons 5 & 6
ACTION Poster Session
Friday, Feb. 21st
Asbury Hall & Salons 5 & 6
ISHLT 45th Annual Meeting & Scientific Sessions
April 27 – 30 | Boston, MA
ACTION Meeting information TBD
Conference Info
ASAIO 2025 - 71st Annual Conference
June 4 – 7 | New Orleans, LA
ACTION Meeting information TBD
Conference Info
OHSU Doernbecher Children's — Portland, Oregon
Deborah Burger, PhD, RN & Patrick Evers, MD
(working on data sharing)
Ludwig Maximilian University, Munich — Munich, Germany
Christine Elena Kamla, MD & Sebastian Michel, MD
Meet our Newest ACTION Team Members!
Aislinn joined ACTION in January 2025 and will be working as a Data Analyst.
Why did you want to join ACTION?
Joining ACTION gave me the opportunity to take part in propelling research forward while allowing me to stay at Cincinnati Children's. What is your favorite part of ACTION?
Everyone on the team is very welcoming and supportive, and they all are striving towards the same goal through collaboration and leadership. What are some of the things that you enjoy doing outside of work?
I enjoy playing and coaching ultimate frisbee, crocheting, baking, and spending time with my cat, Sesame.
Eden joined ACTION in January 2025 and will be working as a Data Management Coordinator.
Why did you want to join ACTION?
I wanted to join ACTION because I am passionate about being part of a team that is really making a difference in patient care! Working with a group of dedicated professionals who are making a difference, while also having the chance to develop my skills and contribute to meaningful work is very important to me. What is your favorite part of ACTION?
My favorite part about ACTION is how welcoming and supportive everyone is. Being part of a team that's so passionate about making a difference in kids' lives is incredibly inspiring and motivates me to be the best I can be! What are some of the things that you enjoy doing outside of work?
Outside of work, I love spending time outdoors, especially hiking with my dog and gardening. I also enjoy baking and trying out new recipes. In my downtime, I like to read and crochet, and I love playing board games with my family.
ACTION @ CHOP's Cardiology 2025
Children’s Hospital of Philadelphia (CHOP)
28th Annual Update on Pediatric and Congenital Cardiovascular Disease
Disney's Yacht & Beach Club Resort | Buena Vista, FL
ACTION Booth – Thursday & Friday, Feb. 20th – 21stSalons 5 & 6
Visit our booth to learn about our collaborative efforts to improve outcomes for heart failure patients! Conference Attendees can also: Join ACTION: Discover how you and/or your institution can become part of our growing network dedicated to enhancing advanced cardiac care. Meet with ACTION Leadership: Engage directly with ACTION leadership members to discuss projects and share your ideas on how you can contribute. Discover Authorship Opportunities: Learn about potential roles in our publications and
share your expertise with the broader healthcare community.
Poster Session – Friday, Feb. 21stAsbury Hall & Salons 5 & 6
Congratulations to Rachel Harris and all the authors of the featured ACTION accepted abstract: Use of SGLT-2 inhibitors in patient with Dystrophinopathy.
Exciting News for Pediatric Heart Care
ACTION centers and Johnson & Johnson MedTech | Heart Recovery have partnered to secure FDA labeling for the Impella Support System in pediatric patients with heart failure. This milestone expands its use beyond adults, offering new hope for children in need of advanced heart support. With over 60 centers collaborating, ACTION gathered critical data to support this achievement. Together, we’re improving outcomes and developing educational tools to empower
families and caregivers. See the full press release...
ACTION | PHTS
Virtual Donor Decision Conference
Call to ACTION for our Female Patients!
Help us understand how healthcare providers currently address women's health in cardiac care. Our goal is to enhance the quality of care for female patients by ensuring that all relevant health aspects, particularly those unique to women, are considered during treatment planning and management discussions. >>> Please complete the ACTION Provider’s Survey <<<<
It's only 13 questions & takes approximately 5 min!!!
Is Genetic Testing Right for You?
Genetic testing may be a discussion between providers and patients and families at any point in their journey. ACTION created this helpful tool to explain genetic testing, how genes are inherited, general information for understanding results, as well as information on working with Genetic Counselors as part of the care team.
Registry Database Updates
Simplified Clinical data as of January 2, 2025
Total # Patients Enrolled 1,861
Total # Patients Enrolled 1,025
Total # Patients Enrolled 178
Total # Patients Enrolled 759 Admission/Recently Discharged: 428
SGLT2: 400
Meds Titration: 40
CardioMEMS: 63
Apple Watch: 10
If you need access to enter data, or have any questions please email us.
Open Positions in ACTION Centers
UCLA Mattel Children’s Hospital — Division of Pediatric Cardiology
Los Angeles, CA
Looking for: Pediatric Heart Failure and Transplantation Physician The Opportunity: Applicants should have formal 4th year fellowship training in Pediatric heart failure, cardiomyopathy, transplantation, and mechanical circulatory support and must be board certified/eligible in Pediatric Cardiology. Current trainees are welcome to apply. The new faculty member will join the Heart Transplant program as a junior transplant cardiologist working with our group of four academic specialized cardiologists, two transplant coordinator/nurse practitioner and an
extensive multidisciplinary team who serve our cardiomyopathy/ventricular device/ heart failure/transplant population. The position also includes a faculty appointment at the David Geffen School of Medicine at UCLA. In addition to heart failure/transplant care, applicants will also participate in general cardiology outpatient clinics, inpatient cardiology service, consults and occasional general cardiology call. Salary and academic rank are commensurate with experience. To Apply: Email Juan Alejos MD, Director - Pediatric Heart Transplant/Heart Failure Service
More info: See full position listing
Stanford University School of Medicine—Stanford Children’s Health (Lucile Packard Children's Hospital)
Palo Alto, CA
Looking for: Pediatric Heart Failure Transplant Faculty (Clinician Educator) in the Division of Cardiology in the Department of Pediatrics The Opportunity: We are specifically interested in candidates with expertise in pediatric heart failure and heart transplantation, as well as longitudinal care of the patient with univentricular heart. We expect the successful candidate to serve as a member of the Pediatric Advanced Cardiac Therapies team, with responsibilities for clinical care, teaching, and academic program development in the fields of heart failure and heart
transplantation. The PACT program provides comprehensive care to children with all stages of heart failure.
Responsibilities Include: Outpatient clinics in heart failure and transplantation, including attending in the clinic and covering telephone consults and questions in conjunction with the NP staff. Inpatient responsibilities including covering the PACT service in the ACCU and CVICU units, with weekend and overnight call. Outreach clinics in heart failure and transplantation. Supervision and clinical support of advanced practitioners in heart failure, VAD and transplantation. Outpatient care in the Comprehensive Single Ventricle Program. Supervision of providers in the Comprehensive Single Ventricle Program and overall program direction.
There is an opportunity to be appointed as the Medical Director of the Single Ventricle Program and will have outpatient and consultative clinical responsibilities in this program. This directorship is an endowed position at LPCH.To Apply: See position listing and email David Rosenthal, Director, Pediatric Heart Failure and Transplantation
More info: See full position listing
|
