Heart of ACTION
Dystrophinopathy in ACTION: The first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective dystrophinopathy registry
Early data from 500 males in the ACTION dystrophinopathy registry show substantial cardiac involvement and broad use of cardioprotective therapies. Ongoing follow-up will define the modern natural history of cardiomyopathy in dystrophinopathy.
Latest Highlights
Dystrophinopathy in ACTION: The first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective dystrophinopathy registry
Early data from 500 males in the ACTION dystrophinopathy registry show substantial cardiac involvement and broad use of cardioprotective therapies. Ongoing follow-up will define the modern natural history of cardiomyopathy in dystrophinopathy.
Faith, Fight, and a Second Heart: Marylu’s Story
At just 10 weeks old, Marylu survived cardiac arrest, multiple surgeries, and a rare diagnosis—emerging with a new heart and extraordinary strength. Her journey is a powerful testament to faith, courage, and miracles.
Translating Vision into Reality: An Interview with Kurt Dasse, PhD
What began as a Navy medic’s desire to heal became a lifelong mission to bring life-sustaining technology to patients in heart failure. As a driving force behind the HeartMate LVAD series, CentriMag, and PediMag systems, his leadership helped shape modern circulatory support and bring hope to countless patients worldwide.
The Heart of Innovation: Dr. Rich Wampler’s Journey from Loss to Life-Saving Discovery
Driven by the loss of his grandfather, Dr. Rich Wampler revolutionized how the world treats heart failure. From the creation of the first implantable rotary blood pump to the development of the HeartMate II and HeartWare HVAD, his groundbreaking work has saved hundreds of thousands of lives – and continues to shape the future of circulatory support.
The Pulse — Nov 2025
Happy Fall to All! We have many exciting updates to share, such as new pediatric Impella education materials for Providers and Patients/Families, a debrief of our incredibly successful first VAD Bootcamp, and many new publications and other tools. As we move into the holiday season, we reflect on our continued appreciation and thankfulness for the engagement and collaboration from all stakeholders that continue to excel our research, quality improvement, education, and advocacy efforts.
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