Early data from 500 males in the ACTION dystrophinopathy registry show substantial cardiac involvement and broad use of cardioprotective therapies. Ongoing follow-up will define the modern natural history of cardiomyopathy in dystrophinopathy.
At just 10 weeks old, Marylu survived cardiac arrest, multiple surgeries, and a rare diagnosis—emerging with a new heart and extraordinary strength. Her journey is a powerful testament to faith, courage, and miracles.
Faith, Fight, and a Second Heart: Marylu’s Story Read More »
What began as a Navy medic’s desire to heal became a lifelong mission to bring life-sustaining technology to patients in heart failure. As a driving force behind the HeartMate LVAD series, CentriMag, and PediMag systems, his leadership helped shape modern circulatory support and bring hope to countless patients worldwide.
Translating Vision into Reality: An Interview with Kurt Dasse, PhD Read More »
Driven by the loss of his grandfather, Dr. Rich Wampler revolutionized how the world treats heart failure. From the creation of the first implantable rotary blood pump to the development of the HeartMate II and HeartWare HVAD, his groundbreaking work has saved hundreds of thousands of lives – and continues to shape the future of circulatory support.
The Heart of Innovation: Dr. Rich Wampler’s Journey from Loss to Life-Saving Discovery Read More »
ACTION is excited to announce the release of the Impella® Heart Pump Patient Education Handbook. This educational tool will help patients learn, stay organized, and feel empowered.
NEW! Impella Patient Education Handbook Read More »
A new multi-center study explores the off-label use of SGLT2 inhibitors in children and adolescents with heart failure, highlighting real-world safety data and underscoring the need for prospective trials.
Use of SGLT2 inhibitors in pediatric heart failure: a multi-center study Read More »
The iDECIDE-VAD-PEDIATRIC decision aid was developed to help families and clinicians navigate the unique challenges of pediatric ventricular assist device implantation by promoting consistent, values-based, and equitable decision-making.
Check out our One Page Summary (OPS) featuring the Impella® Left CP and the Impella® 5.5 (with SmartAssist) for providers. It serves as a quick overview of the device, including, device selection, system components, display elements, waveforms, as well as highlighting anticoagulation, power sources and potential scenarios.
Fontan ACTION Plan for Patients Read More »
ACTION is excited to announce the launch of our newest initiative: Cardio-Oncology! This initiative will focus on supporting individuals whose cancer treatments may affect their hearts. Our first resource, created in partnership with the International Cardio-Oncology Society (IC-OS), is a Cardiotoxicity & Cancer informational handout designed for patients and families.
Cardio-Oncology Introduction Read More »
On the 11th anniversary of her daughter’s heart transplant, Riki reunited with the very doctors who made it possible. Once the youngest heart transplant patient at Texas Children’s Hospital, Juliana is now 11—spirited, thriving, and living proof of the gift of life.
A Full-Circle Moment: 11 Years After Juliana’s Heart Transplant Read More »
