In this ACTION registry analysis of pediatric VAD recipients, patients bridged to transplant candidacy (rather than already listed at implant) faced significantly higher rates of major adverse events, on-device mortality, and lower rates of successful transplantation compared to bridge-to-transplant patients.
Check out the newest Harmonized Protocol for Providers caring for VAD and Heart Transplantation patients with Duchenne Muscular Dystrophy.
VAD and Heart Transplantation in DMD: Guidance for Providers Read More »
At just 10 weeks old, Marylu survived cardiac arrest, multiple surgeries, and a rare diagnosis—emerging with a new heart and extraordinary strength. Her journey is a powerful testament to faith, courage, and miracles.
Faith, Fight, and a Second Heart: Marylu’s Story Read More »
The use of VADs in pediatric restrictive and hypertrophic cardiomyopathy is rare, but this ACTION multi-center registry analysis highlights that support is feasible, particularly in children with RCM. While the majority of patients were successfully bridged to transplant, outcomes were poorer in HCM patients, especially those requiring BiVAD support.
Born with a complex congenital heart defect, Owen has faced more medical challenges in his 20 years than most do in a lifetime, however his resilience and optimism have carried him through. Today, he’s thriving as a college student with dreams of becoming a physician’s assistant and raising awareness about organ donation. His journey—from patient to future healthcare provider—is a testament to the power of perseverance, community support, and lifesaving health care.
Owen’s Story: A Journey of Resilience and Hope Read More »
Poster Session 5:40 –7:00 PM PST | Friday, November 15th Impact of LVAD Support with Impella 5.5 to Bridge Adolescents to Heart Transplant – An Evolving Strategy Cihangir Buyukgoz,
We’re excited to introduce this valuable roadmap resource tool to help provide recommendations on routine Fontan surveillance and when to refer for heart failure/transplant care. A referral does not necessarily mean
Fontan Surveillance Resource Tool Read More »
Patients with Fontan failure are high-risk candidates for heart transplantation and other advanced therapies. Understanding the outcomes following initial heart failure consultation can help define appropriate timing of referral for advanced heart failure care.
Outcomes after initial heart failure consultation in Fontan patients Read More »
On any given day, you may find Riley watching live sports in his home state of Montana. You may not know that Riley has been living with Duchenne Muscular Dystrophy since he was 3 years old. With his family’s fierce support, he’s lived wholeheartedly despite the challenges of his condition. From intensive heart transplant surgery to obtaining a college degree, Riley follows his mother Nina’s advice: that a “life is meant to be lived.”
Defying the Odds: Riley’s Life with Duchenne Read More »
