Department of Defense Funds ACTION to Advance Duchenne Muscular Dystrophy Cardiac Research
ACTION receives $910,000 Department of Defense award to study the evolving impact of therapies on heart disease in Duchenne muscular dystrophy
Cincinnati Children’s
Defying the Odds: Riley’s Life with Duchenne
On any given day, you may find Riley watching live sports in his home state of Montana. You may not know that Riley has been living with Duchenne Muscular Dystrophy since he was 3 years old. With his family’s fierce support, he’s lived wholeheartedly despite the challenges of his condition. From intensive heart transplant surgery to obtaining a college degree, Riley follows his mother Nina’s advice: that a “life is meant to be lived.”
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Care Across State Lines: Ricky’s Journey to Life-Saving Surgery
Ricky was diagnosed with Duchenne Muscular Dystrophy (DMD) within the first year of his life. With the unyielding support of his mother, Rosie, he has defied the odds of a complex disease. From diagnosis to treatment, and now recovery, Ricky goes everywhere, experiencing life to the fullest.
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1st International Pediatric Cardio-Oncology Conference
Thought leaders in this emerging field will convene over the course of one week to share ideas, learn and create pathways to deliver cutting edge care to pediatric and young adult cerebrovascular and stroke patients.
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Parent Project Muscular Dystrophy (PPMD) funds ACTION to expand Muscular Dystrophy collaboration efforts
ACTION receives $2 million grant from Parent Project Muscular Dystrophy (PPMD) to expand muscular dystrophy focused research and quality improvement initiatives
Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION
Published on March 5, 2022, Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION focused on characterizing strokes in children with ventricular assist devices. This review included
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Hemodynamic Response to Device Titration in the Shunted Single Ventricle Circulation
It’s critical to optimize clinical outcomes of VAD support for shunted single ventricle patients. “Hemodynamic Response to Device Titration in the Shunted Single Ventricle Circulation: A Patient Cohort Modeling Study”
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Learning networks in pediatric heart failure and transplantation
“Learning networks in pediatric heart failure and transplantation” was published June 17, 2021 in Pediatric Transplantation. This ACTION publication defines “learning networks” and how they’re different from traditional clinical research
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Variation in Cardiac Rehabilitation for Pediatric VAD Recipients Across North America
There is little standardization across pediatric heart failure centers when it comes to the use of exercise testing and cardiac rehabilitation (CR) after VAD placement. “Variation in Cardiac Rehabilitation for
Variation in Cardiac Rehabilitation for Pediatric VAD Recipients Across North America Read More »
ISHLT Consensus Document for MCS Infection Prevention and Management
“An ISHLT consensus document for prevention and management strategies for mechanical circulatory support infection” was published in The Journal of Heart and Lung Transplantation in June of 2017. This important
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