cardiomyopathy

Defying the Odds: Riley’s Life with Duchenne

On any given day, you may find Riley watching live sports in his home state of Montana. You may not know that Riley has been living with Duchenne Muscular Dystrophy since he was 3 years old. With his family’s fierce support, he’s lived wholeheartedly despite the challenges of his condition. From intensive heart transplant surgery to obtaining a college degree, Riley follows his mother Nina’s advice: that a “life is meant to be lived.”

Clinical Outcomes of SARS-CoV-2 Infection in Pediatric Patients on Ventricular Assist Device Support: An Action Registry Analysis

Abstract Adult patients on left ventricular assist device (LVAD) support have increased morbidity and mortality after severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection. There are no reported clinical data …

Clinical Outcomes of SARS-CoV-2 Infection in Pediatric Patients on Ventricular Assist Device Support: An Action Registry Analysis Read More »

Initial multicenter experience with ventricular assist devices in children and young adults with muscular dystrophy: An ACTION registry analysis

Purpose Cardiac disease results in significant morbidity and mortality in patients with muscular dystrophy (MD). Single centers have reported their ventricular assist device (VAD) experience in specific MDs and in …

Initial multicenter experience with ventricular assist devices in children and young adults with muscular dystrophy: An ACTION registry analysis Read More »

Cardiomyopathy

Cardiomyopathy patients have heart muscle problems that affect the ability of the heart to fill with blood and/or eject blood to the body. In some cases, they may have signs and symptoms of heart failure—these patients will need routine monitoring and may need treatment such as cardiac medicines, mechanical devices, or transplantation.

Ventricular assist devices in pediatric cardiomyopathy and congenital heart disease: An analysis of the German National Register for Congenital Heart Defects

The data on the use and outcomes of VADs in children is limited, specifically for those with end-stage heart failure due to an acquired heart disease. Because of this, studies …

Ventricular assist devices in pediatric cardiomyopathy and congenital heart disease: An analysis of the German National Register for Congenital Heart Defects Read More »