Our Publications

Our Transparency Leads to ACTION

Manuscripts Published
Abstracts Accepted
Harmonized Protocols

Abstracts Accepted

  1. Reducing Donor Acceptance Practice Variation – Learnings from a Discussion Forum (Bansal, Neha, et al.) ISHLT 2022
  2. The Initial Analysis of Infectious Adverse Events in Pediatric Ventricular Assist Devices Reported to the ACTION Registry (Bansal, Neha, et al.) ISHLT 2022
  3. Taking ACTION: A Contemporary Prognostic Tool for Pediatric VAD Mortality (Boucek, Katerina, et al.) ASAIO 2022
  4. Outcomes after initial heart failure consultation n fontan patients (Chen, Sharon, et al.) ISHLT 2022
  5. Inter-Rater Reliability of Total Cardiac Volume Measurement for Heart transplantation: An ACTION Collaborative Study (Dykes, John, et al.) ISHLT 2022
  6. A Novel Approach To Pediatric Heart Failure Quality Improvement Within The ACTION Network (Godown, Justin, et al.) ISHLT 2022
  7. Outcomes Of Intracorporeal Continuous, Paracorporeal Continuous, And Paracorporeal Pulsatile Ventricular Assist Devices In Pediatric Patients 10-30 Kg (Lee, Jacqueline, et al.) ISHLT 2022
  8. Ventricular Assist Device in Pediatric Restrictive and Hypertrophic Cardiomyopathy: An Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Analyisis (Mokshagundam, Deepa, et al.) ISHLT 2022
  9. Feasibility of Implementation of a Heart Failure Communication Checklist in the Multi-Center ACTION Network (Simpson, Kathleen, et al.) ISHLT 2022
  10. Characteristics and outcomes of patients supported with impella percutaneous vad device at pediatric institutions: Action collaborative Experience (Tume, Sebastian, et al.) ISHLT 2022
  1. Bleeding – non CNS bleeding in VAD (Bansal, Neha, et al.) AHA 2021
  2. Promoting Discharges In Pediatric Patients With Congenital Heart Disease On Ventricular Assist DeviceSupport: An ACTION Quality Improvement Project (Bearl, David, et al.) AHA 2021
  3. ACTION PHIS Data for BiVal Resource Utilization Project (Burstein, Danielle, et al.) AHA 2021
  4. Pediatric Cardiac Potpourri (Burstein, Danielle, et al.) ISHLT 2021
  5. New Quality Improvement Initiatives In Pediatric Heart Failure Through The ACTION Collaborative Learning Network (Burstein, Danielle, et al.) ASAIO 2021
  6. DCM and discharge demographics info than report on slide 13/14 (Butto, Arene, et al.) AHA 2021
  7. Contemporary Use of Patient-Reported Outcomes (PROs) in Pediatric VAD Recipients: Feasibility in ACTION (Cousino, Melissa, May, Lindsay, et al.) ASAIO 2021
  8. Atrial Abstract/Is it True Less is More and Smaller is Better? Surgical Strategies in MCS (Dykes, John, et al.) ISHLT 2021
  9. Single Ventrical Patients/Outcomes of Infants and Children with Stage 1 Single Ventricle Implanted with Ventricular Assist Devices: An Analysis of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Registry (Joong, Anna, et al.) ISHLT 2021
  10. Influence of Patient Weight on VAD Outcomes in Pediatric and Young Adult Patients With Dilated Cardiomyopathy – An Analysis of the ACTION Registry (Kwiatkowski, David, et al.) ASAIO 2021
  11. Stroke QI – “When the Going Gets Tough: MCS Complications” (Murray, Jenna, et al.) ISHLT 2021
  12. Ventricular Assist Device Outcomes In Children And Young Adults With Muscular Dystrophy: An ACTION Analysis (Nandi, Deipanjan, et al.) ISHLT 2021
  13. Summary of Strokes/Small But Mighty: MCS in Pediatrics (Peng, David, et al.) ISHLT 2021
  14. Total Network Outcomes/The ACTION Quality Improvement Collaborative: 2020 Annual Report (Rosenthal, David, et al.) ISHLT 2021
  15. The Adjudication Process at ACTION – Providing Real-World High-Quality Data (Shezad, Muhammad, et al.) ISHLT 2021
  1. HVAD Usage and Outcomes in the Current Pediatric Ventricular Assist Device Field – An Advanced Cardiac Therapies Improving Outcomes Network Analysis (Auerbach, Scott, et al.) ASAIO 2020
  2. Discharge and Readmissions After Ventricular Assist Device Placement in the US Pediatric Hospitals (Bearl, David, et al.) ASAIO 2020
  3. Variation in Cardiac Rehabilitation for Pediatric Ventricular Assist Device Recipients Across North America (Burstein, Danielle, et al.) ASAIO 2020
  4. Significant Variation in Cardiac Rehabilitation For Pediatric Ventricular Assist Device Recipients Across North American: An ACTION Network Survey (Burstein, Danielle, et al.) ISHLT 2020
  5. The Fontan VAD Physiology Project (FVPP) (Cedars, Ari, et al.) ISHLT 2020
  6. Understanding Pediatric VAD Center Practices for Establishing and Maintaining Optimal Support (Donnellan, Amy, et al.) ISHLT 2020
  7. Preparing For Discharge In Pediatric Ventricular Assist Device Supported Patients (Elias, Barbara, et al.) ISHLT 2020
  8. Contemporary Berlin Heart EXCOR outcomes in North America: Report from the ACTION Registry (Lorts, Angela, et al.) ISHLT 2020
  9. “How are you doing?”: Patient and Family Support Resources for Children on Ventricular Assist Devices (Machado, Desiree, et al.) ISHLT 2020
  10. Barriers to Establishing and Maintaining Therapeutic Anticoagulation in Pediatric Ventricular Assist Device Support: Advanced Cardiac Therapies Improving Outcomes Network Initiative (Mehegan, Mary, et al.) ISHLT 2020
  11. Intracorporeal VAD Outcomes in the ACTION Quality Improvement Network (Sutcliffe, David, et al.) ISHLT 2020
  12. Current Discharge Practices In Pediatric Vad Patients: A Survey Of The ACTION Collaborative (Tunuguntla, Hari, et al.) ISHLT 2020
  1. The ABC’s of Reducing Stroke (Krack, Paige, et al.) IHI 2019
  2. Reducing pump thrombosis and stroke through impact of ACTION collaborative in children supported with pulsatile ventricular assist devices (Tume, Sebastian, et al.) PCICS 2019

Harmonized Protocols

  1. Antibiotic Prophylaxis for Pediatric VADs
  2. Antiplatelet Therapy Strategies
  3. Berlin Blood Pump Head Change Guideline
  4. Berlin Heart Emergency Algorithms & Care – Pocket Guide
  5. Bleeding Protocol
  6. Care of Cannula Sites BH Protocol
  7. Care of Driveline Exit Site CF-VAD Protocol
  8. CF-VAD Paracorporeal Circuit Change Protocol
  9. Deactivation Pedimag & Centrimag
  10. Deactivation HeartWare
  11. Deactivation HeartMate II or 3
  12. Deactivation Berlin Heart
  13. Compassionate Deactivation MCS Protocol
  14. CDMCS Checklist Protocol
  15. DTI (Bivalirudin) Harmonization Protocol
  16. Echo Imaging Protocol
  17. Fontan VAD Management Protocol
  18. Impella Percutaneous Temporary VAD Protocol
  19. Pediatric VAD Patient and Device Selection Protocol
  20. Pre-Implant Protocol
  21. Pump Thrombosis Protocol
  22. Right Heart Failure Protocol
  23. Steroids & Inflammation Protocol
  24. Stroke Guide
  25. SynCardia Guidelines
  26. Transfusions in Peds VAD Patients
  27. VAD Nutrition Protocol
  28. VAD Weaning Explant Protocol
  1. Considerations for Advanced Heart Failure Consultation in Fontan Patients
  2. Fontan PLE Protocol
  3. Fontan VAD Management Protocol
  1. DMD Therapy Harmonization
  2. Dystrophinopathy Gene Therapy Diagnostic Harmonization
  1. CardioMEMS Prior Auth form
  2. CardioMEMS PTA Letter of Medical Necessity Template
  3. CardioMEMS Protocol
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