Our Publications

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Manuscripts Published
Abstracts Accepted
Harmonized Protocols

Abstracts Accepted

  1. Clinical Characteristics and Outcomes of Pediatric Destination Ventricular Assist Devices (Christopher Knoll, et al) ASAIO 2024
  2. Double Bridge to Heart Transplantation: Outcomes of Early vs Delayed ECMO Crossover in the Pediatric Population – An Analysis of the ACTION Registry (Raja, Kishore, et al) ISHLT 2024
  3. SGLT2i Use in Pediatric Heart Failure: Multicenter Study (Butts, Ryan, et al) ISHLT 2024
  4. VAD Support Can Effectively Bridge Pediatric Patients to Heart Re-Transplant: An ACTION Study (Lukich, Stevan, et al) ISHLT 2024
  5. External Validation of a Risk Score Assessment for Pediatric Ventricular Assist Device Mortality (Reaney, Meaghan, et al) ISHLT 2024
  6. The Outcomes of Temporary Mechanical Circulatory Support Using Paracorporeal Continuous Flow Pump in Children; A Multicenter Study Using ACTION Learning Network (Moon, Jiyong, et al) ISHLT 2024
  7. Timing of Stroke in Children Supported by Ventricular Assist Devices – An ACTION Registry Report (Farrukh Shezad, Muhammad, et al) ISHLT 2024
  8. Explantation of Durable Ventricular Assist Device for Myocardial Functional Recovery in Children: A Report from The ACTION Registry (Langanecha, Bhavikkumar, et al) ISHLT 2024
  9. Collective Five Year ACTION VAD Registry Experience (Edelson, Jonathan, et al) ISHLT 2024
  10. Clinical Outcomes & Complications in Pediatric VADs Implanted as Bridge to Candidacy (Knoll, Christopher, et al) ISHLT 2024
  11. Patient-Reported Outcomes in Pediatric VAD Recipients: ACTION Findings Stratified by Device (May, Lindsay, et al) ISHLT 2024
  12. A Pediatric Heart Failure Registry: The Time for Action is Now (Spinner, Joseph, et al) ISHLT 2024
  13. Practice Variation in Anticoagulation Management of Outpatient Pediatric Cardiomyopathy Patients: Survey of ACTION Providers (Townsend, Madeleine, et al) ISHLT 2024
  14. Current State of Neurodevelopmental and Psychosocial Care Practices for Pediatric Patients with Ventricular Assist Devices: An ACTION and CNOC Collaborative Survey (Dusing, Catherine, et al) Cardiac Neurodevelopmental Outcome Collaborative 2024
  1. Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Outcomes Report ( Bonilla Ramirez, Carlos, et al.) ISHLT 2023
  2. Size Isn’t Everything: Survival for Very Small Infants Supported by VAD (Frandsen, Erik, et al.) ISHLT 2023
  3. Post-Stage 2 Palliation Single Ventricular Assist Device Outcomes: An Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Registry Analysis (Rabinowitz, Edon, et al.) ISHLT 2023
  4. Taking ACTION: Creation of a Prospective Registry of Boys with Dystrophinopathy and Ventricular Dysfunction to Define Cardiac Medication Use And Optimize Guideline Directed Medical Therapy (Wittlieb-Weber, Carol, et al.) ISHLT 2023
  5. A Pediatric Heart Failure Registry is Needed: A Time for ACTION (Spinner, Joseph, et al) ISHLT 2023
  6. Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from the ACTION Network (Nandi, Deipanjan, et al) ISHLT 2023
  7. What To Do With a Squeaky Wheel? Ventricular Assist Device Use in Children With Mechanical Valves In The ACTION Database (Hussain, Sabena, et al) ISHLT 2023
  8. Impact of Heartware VAD Discontinuation on the Pediatric Population-An Advanced Heart Failure Improving Outcomes (ACTION) Registry Analysis (Niebler, Rob, et al) ISHLT 2023
  9. Over 100 Fontan Patients on Ventricular Assist Device Support: An ACTION Update (Chen, Sharon, et al) ASAIO 2023
  10. Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: ACTION MCS Risk Score (Bonilla Ramirez, Carlos, et al) ASAIO 2023
  11. Impact of Mechanical Ventilation Duration on Outcomes in Children after Ventricular Assist Device Placement: A linked analysis from the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) and Pediatric Cardiac Critical Care Consortium (PC4) Registries (Perry, Tanya, et al) ASAIO 2023
  12. Postoperative Anticoagulation With Bivalirudin Versus Heparin For HeartMate 3 in children (Bonilla Ramirez, Carlos, et al) ASAIO 2023
  13. VAD Discharge at Pediatric Centers- Why Can’t We Get Home? (Tunuguntla, Hari, et al) ASAIO 2023
  14. Impact of Ventricular Assist Device Use on Pediatric Heart Transplant Outcomes in a Linked Cohort of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) and Pediatric Heart Transplant Society (PHTS) Databases (Auerbach, Scott, et al) AHA 2023
  1. Reducing Donor Acceptance Practice Variation – Learnings from a Discussion Forum (Bansal, Neha, et al.) ISHLT 2022
  2. The Initial Analysis of Infectious Adverse Events in Pediatric Ventricular Assist Devices Reported to the ACTION Registry (Bansal, Neha, et al.) ISHLT 2022
  3. Taking ACTION: A Contemporary Prognostic Tool for Pediatric VAD Mortality (Boucek, Katerina, et al.) ASAIO 2022
  4. Outcomes after initial heart failure consultation n fontan patients (Chen, Sharon, et al.) ISHLT 2022
  5. Inter-Rater Reliability of Total Cardiac Volume Measurement for Heart transplantation: An ACTION Collaborative Study (Dykes, John, et al.) ISHLT 2022
  6. A Novel Approach To Pediatric Heart Failure Quality Improvement Within The ACTION Network (Godown, Justin, et al.) ISHLT 2022
  7. Outcomes Of Intracorporeal Continuous, Paracorporeal Continuous, And Paracorporeal Pulsatile Ventricular Assist Devices In Pediatric Patients 10-30 Kg (Lee, Jacqueline, et al.) ISHLT 2022
  8. Ventricular Assist Device in Pediatric Restrictive and Hypertrophic Cardiomyopathy: An Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Analyisis (Mokshagundam, Deepa, et al.) ISHLT 2022
  9. Feasibility of Implementation of a Heart Failure Communication Checklist in the Multi-Center ACTION Network (Simpson, Kathleen, et al.) ISHLT 2022
  10. Characteristics and outcomes of patients supported with impella percutaneous vad device at pediatric institutions: Action collaborative Experience (Tume, Sebastian, et al.) ISHLT 2022
  1. Bleeding – non CNS bleeding in VAD (Bansal, Neha, et al.) AHA 2021
  2. Promoting Discharges In Pediatric Patients With Congenital Heart Disease On Ventricular Assist DeviceSupport: An ACTION Quality Improvement Project (Bearl, David, et al.) AHA 2021
  3. ACTION PHIS Data for BiVal Resource Utilization Project (Burstein, Danielle, et al.) AHA 2021
  4. Pediatric Cardiac Potpourri (Burstein, Danielle, et al.) ISHLT 2021
  5. New Quality Improvement Initiatives In Pediatric Heart Failure Through The ACTION Collaborative Learning Network (Burstein, Danielle, et al.) ASAIO 2021
  6. DCM and discharge demographics info than report on slide 13/14 (Butto, Arene, et al.) AHA 2021
  7. Contemporary Use of Patient-Reported Outcomes (PROs) in Pediatric VAD Recipients: Feasibility in ACTION (Cousino, Melissa, May, Lindsay, et al.) ASAIO 2021
  8. Atrial Abstract/Is it True Less is More and Smaller is Better? Surgical Strategies in MCS (Dykes, John, et al.) ISHLT 2021
  9. Single Ventrical Patients/Outcomes of Infants and Children with Stage 1 Single Ventricle Implanted with Ventricular Assist Devices: An Analysis of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Registry (Joong, Anna, et al.) ISHLT 2021
  10. Influence of Patient Weight on VAD Outcomes in Pediatric and Young Adult Patients With Dilated Cardiomyopathy – An Analysis of the ACTION Registry (Kwiatkowski, David, et al.) ASAIO 2021
  11. Stroke QI – “When the Going Gets Tough: MCS Complications” (Murray, Jenna, et al.) ISHLT 2021
  12. Ventricular Assist Device Outcomes In Children And Young Adults With Muscular Dystrophy: An ACTION Analysis (Nandi, Deipanjan, et al.) ISHLT 2021
  13. Summary of Strokes/Small But Mighty: MCS in Pediatrics (Peng, David, et al.) ISHLT 2021
  14. Total Network Outcomes/The ACTION Quality Improvement Collaborative: 2020 Annual Report (Rosenthal, David, et al.) ISHLT 2021
  15. The Adjudication Process at ACTION – Providing Real-World High-Quality Data (Shezad, Muhammad, et al.) ISHLT 2021
  1. HVAD Usage and Outcomes in the Current Pediatric Ventricular Assist Device Field – An Advanced Cardiac Therapies Improving Outcomes Network Analysis (Auerbach, Scott, et al.) ASAIO 2020
  2. Discharge and Readmissions After Ventricular Assist Device Placement in the US Pediatric Hospitals (Bearl, David, et al.) ASAIO 2020
  3. Variation in Cardiac Rehabilitation for Pediatric Ventricular Assist Device Recipients Across North America (Burstein, Danielle, et al.) ASAIO 2020
  4. Significant Variation in Cardiac Rehabilitation For Pediatric Ventricular Assist Device Recipients Across North American: An ACTION Network Survey (Burstein, Danielle, et al.) ISHLT 2020
  5. The Fontan VAD Physiology Project (FVPP) (Cedars, Ari, et al.) ISHLT 2020
  6. Understanding Pediatric VAD Center Practices for Establishing and Maintaining Optimal Support (Donnellan, Amy, et al.) ISHLT 2020
  7. Preparing For Discharge In Pediatric Ventricular Assist Device Supported Patients (Elias, Barbara, et al.) ISHLT 2020
  8. Contemporary Berlin Heart EXCOR outcomes in North America: Report from the ACTION Registry (Lorts, Angela, et al.) ISHLT 2020
  9. “How are you doing?”: Patient and Family Support Resources for Children on Ventricular Assist Devices (Machado, Desiree, et al.) ISHLT 2020
  10. Barriers to Establishing and Maintaining Therapeutic Anticoagulation in Pediatric Ventricular Assist Device Support: Advanced Cardiac Therapies Improving Outcomes Network Initiative (Mehegan, Mary, et al.) ISHLT 2020
  11. Intracorporeal VAD Outcomes in the ACTION Quality Improvement Network (Sutcliffe, David, et al.) ISHLT 2020
  12. Current Discharge Practices In Pediatric Vad Patients: A Survey Of The ACTION Collaborative (Tunuguntla, Hari, et al.) ISHLT 2020
  1. The ABC’s of Reducing Stroke (Krack, Paige, et al.) IHI 2019
  2. Reducing pump thrombosis and stroke through impact of ACTION collaborative in children supported with pulsatile ventricular assist devices (Tume, Sebastian, et al.) PCICS 2019

Harmonized Protocols

  1. Antiplatelet Strategies for Paracorporeal VADs
  2. Berlin Heart Blood Pump Assessment & Exchange Guideline
  3. Berlin Heart Emergency Algorithms & Care – Pocket Guide
  4. Bleeding Protocol for Pediatric VADs
  5. Continuous Flow Paracorporeal VAD Circuit Change Guideline
  6. Compassionate Deactivation of Berlin Heart in Children
  7. Compassionate Deactivation of HeartWare HVAD in Children
  8. Compassionate Deactivation of HeartMate II or 3
  9. Compassionate Deactivation Mechanical Circulatory Support in Children
  10. Compassionate Deactivation MCS Checklist
  11. Compassionate Deactivation Pedimag & Centrimag
  12. Direct Thrombin Inhibitor (DTI) Harmonization Protocol for VADs
  13. Echo Protocol for Children with Implantable CF VADs
  14. Fontan VAD Management Protocol
  15. Impella Percutaneous Temporary VAD Management in Pediatric Patient
  16. Impella Percutaneous Temporary VAD Management – Abbreviated Points for Quick Reference
  17. Infection Prevention & Management: Antibiotic Prophylaxis for Pediatric VADs
  18. Infection Prevention & Management: Care of Cannula Site for Berlin Heart Pediatric VADs
  19. Infection Prevention & Management: Care of Driveline Exit Site for Implantable CF-VADs
  20. Infection Prevention & Management: Driveline & Cannula Site Infection Management for Pediatric VAD Patients
  21. Pediatric VAD Patient and Device Selection
  22. Pre-Implant Protocol for Pediatric Patients Evaluated for VADs
  23. Approach to Pump Thrombosis in Pediatric VADs
  24. Right Heart Failure Management for Pediatric VADs
  25. Steroids & Inflammation in Pediatric VADs
  26. Steps to Start a VAD Stroke Management Pathway
  27. SynCardia Total Artificial Heart (TAH-t) Management
  28. Transfusion Rationalization on Pediatric VADs
  29. VAD Nutrition
  30. Weaning & Explant Protocol for Pediatric VADs
  1. Considerations for Advanced Heart Failure Consultation in CHD Patients
  3. Fitness Assessment and Promotion in Pediatric Heart Failure: Stable Post-VAD and Heart Failure
  4. Sodium-Glucose Costransporter-2 Inhibitors (SGLT2i)
  1. Considerations for Advanced Heart Failure Consultation in Fontan Patients
  2. Fontan PLE Protocol
  3. Fontan VAD Management Protocol
  1. Dystrophinopathy Ambulatory Electrophysiologic Monitoring Harmonization
  2. DMD Therapy Harmonization
  3. Dystrophinopathy Gene Therapy Diagnostic Harmonization
  1. CardioMEMS Prior Auth form
  2. CardioMEMS PTA Letter of Medical Necessity Template
  3. CardioMEMS Protocol
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