ACTION 4 ALL – September 2025 Meeting

This quarterly meeting is open to everyone — all active centers, patient & family members, and industry collaborators! Join us to hear from leadership about current projects, upcoming initiatives, and opportunities to get involved!

4:30–5:00 PM

• Hear from Transplant Advocate Partners (TAP) members Emma Rothman (NYP Morgan Stanley Children’s) and Paulina Nieto (IU Health Riley Hospital for Children), both of whom are pediatric heart recipients.Emma and Paulina will provide an update on the program goals, status, and their experiences. Program leads Emily Perito, Joseph Hillenburg, and Melissa McQueen will also be available to answer any questionsTransplant Advocate Partners is administered under the PCORI-funded PARTNER AD3vance grant as a collaboration between ACTION, IROC, Starzl Network, and Transplant Families.

5:00–5:30 PM

• Advocacy Discussion RE: OPO’s, Organ Donor / Transplant News, Devices & Equipment
• Update on VAD Patient Reported Outcomes

Register to Join us