Resources can make a difference.
Resources serve as an integral part of our mission to bring patients and families together. They provide stories of success and offer information on the medical devices used across our pediatric centers.
Please see below for links to support groups and social media platforms, as well as patient stories from several of our participating institutions, and helpful industry information links for patient and caregivers.
Read more "About ACTION" for patients and families.
Join fact - families in action
Fill out and send in this form to nominate yourself or someone you know to join FACT - Families in ACTION. This diverse group of patients, parents and caregivers guides our quality improvement initiatives by sharing their lived experiences, contributing to intervention design and implementation, and raising awareness of our learning health system via social media and advocacy efforts.
Tessa's Story - HeartWare; ACTION
*If you would like to suggest a resource be added to this page, please email us at firstname.lastname@example.org with your suggestion. Thank you!