ACTION writing group working on “ABC’s of Stroke” Manuscript. Leadership group met this month to discuss important topics and strategy for the network.
ACTION is gearing up for our Fall Meetings; Leadership Meeting in September & Learning Session in November! We now have over 170 patients entered into the ACTION registry! Results are in from our “Cardiac Rehabilitation with VAD” survey.
ACTION’s first quarterly data reports were distributed, Families in ACTION—FACT was launched, and a pediatric VAD billing guide was developed and shared across the network.
We celebrated our learning network’s 2nd Birthday in June 2019! We also had a successful update meeting at the ASAIO 65th Annual Conference in San Francisco, CA. ACTION also created a new Heart Failure committee this month.
The ACTION network had a successful leadership meeting in which plans for multiple new projects were discussed and formalized. The Discharge QI project planning continued, interventions were identified, and 2 interventions were selected for development and testing across the network. The Patient Reported Outcomes Committee conducted a network survey regarding approaches to patient/family support at ACTION sites.
The ACTION network had a successful meeting at ISHLT in which 26 pediatric centers attended. The Fontan-VAD Physiology Project (FVPP) was also launched this month.
New educational video launched for “Patients Teaching Patients,” and the Discharge & Outpatient Committee presented survey results regarding the VAD patient discharge process and perceived barriers to discharge.
ACTION Utilization & Value Committee presented survey results regarding device utilization, billing practices, etc. “Discharge” introduced as next focus area for improvement interventions. Two new centers joined the network.
Take a look back at the ACTION 2018 Highlights Report. Network and committee leaders prepared strategic plans for 2019 to focus efforts on the projects with the greatest impacts. ACTION Harmonization Committee released survey data on program guidelines and protocols.
All ACTION Abstracts accepted for ISHLT Presentations at the April 2019 meeting! ACTION network also launched the ABC’s of Reducing Stroke in pediatric VAD patients, which consists of a quality improvement bundle to improve Anticoagulation management, Blood Pressure management, and Communication amongst providers, patients, and families.
ACTION Clinical Database went live for Phase I data collection on pediatric VAD patients.
ACTION network submitted 4 abstracts to the ISHLT 2019 annual meeting. Harmonization Committee began collecting site-specific protocols and guidelines to harmonize best practices for 9 topics.
Education Committee began working with designers to create pediatric-friendly and age-appropriate VAD education materials. ACTION also conducted the first learning session for the network.
Revealed and circulated the Failing Fontan Referral document, which provides considerations on when to refer a Fontan patient for advanced heart failure consultation. Click here to download document.
Network began anonymized quality improvement data collection for the stroke reduction global aim measures.
Action meeting at annual ASAIO meeting was a success! Committee and learning lab leaders shared missions and visions, updates and ideas for projects, and planned for next steps.
Recent review of pediatric stroke data shows how costly a stroke is for a pediatric VAD patient, as well as demonstrates how a stroke complicates a patient's clinical course and outcome.
Failing Fontan population discussed at March meeting. Action will create a Learning Lab for this specialized patient population.
VAD Program Pathway activity conducted at design meeting to identify strengths and opportunities of participating care centers.
Action network standardized Bivalirudin use in VAD patients.